Orlagh & Dan Goodwin
As a young person living with an MPN I hope that my story will provide comfort to other young people…
Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.
As a young person living with an MPN I hope that my story will provide comfort to other young people…
“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way…
“My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before,…
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis…
15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28,…
15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is…
The language of haematologists is complex. Knowing the lingo can help you find your way in the strange land of myeloproliferative neoplasms (MPNs). When you first learn you have a…
As patients with myeloproliferative neoplasms (MPNs), there’s one thing many of us have in common: we may feel fatigued. But there are solutions available that can give us more energy.…
Some people with myeloproliferative neoplasms (MPNs) feel just fine. If you feel strong, take advantage of this and protect your long-term health by getting active. Not everyone with an MPN…
A coordinated care plan between your haematologist and your obstetrician helps ensure the health of you and your unborn child. Some people are diagnosed with a myeloproliferative neoplasm (MPN) in…
One of the biggest challenges some people face when they have a myeloproliferative neoplasm (MPN) is finding someone to talk with, someone who really understands. Many of us didn’t know…
Myeloproliferative neoplasms (MPNs) are chronic, long-term illnesses, and because they continue through our lives, they can change the way we see ourselves. While many people take their illness in their…
The video of the MPN Voice patients’ virtual forum, held on Friday 8 March 2024, is now available to view. This online forum focussing on Post ASH (American Society of Hematology) Updates features talks from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Jonathan Lambert, University College London Hospitals NHS FT; Dr Bethan…
Wednesday 17 April 2024, 4 – 8 pm (arrival/registration from 4 pm with complimentary buffet/refreshments) Venue The Turnstone Suite Cambridge…
Saturday 8 June 2024, 10.00 am – 4.30 pm (arrival/registration from 10 am with tea/coffee/pastries) Venue Ashling Hotel Parkgate Street…
We are delighted to announce that NICE (the National Institute for Health and Care Excellence) has recently released guidance recommending…
In Conversation With … Dana Turner, who talks to Nona about being diagnosed with PV when she was 29 years…