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Search:
  • About Us
    • Our Mission
    • News
    • Who is who at MPN Voice – meet the teams
    • Videos
      • MPN Voice YouTube videos
      • Living with MPNs Day Saturday 18th November 2023 in London
      • All Other Videos
    • Newsletters
    • How your money helps
    • Epidemiology Study
    • Young People and MPNs Blog
    • MPN Voice Vlogcasts – In Conversation With …..
  • About MPNs
    • About MPNs
      • Diagnosed with MPN?
      • What do blood counts mean?
      • What are MPNs?
      • What causes MPNs?
      • Essential thrombocythaemia (ET)
      • Myelofibrosis (MF)
      • Polycythaemia vera
      • A-Z of terminology
    • Treatments
      • General Info
      • Treatment leaflets
      • Anagrelide
      • Integrative treatment
      • Aspirin
      • Cytarabine
      • Hydroxycarbamide
      • Inrebic
      • Interferon alpha
      • Melphalan, busulfan and P32
      • Ruxolitinib
      • Thalidomide
      • Venesection (phlebotomy)
      • Bone marrow transplant
      • Additional treatments
    • Trials and Research
      • Trials and Research
      • Going on a Trial
      • Current UK MPN trials
      • Guy’s Hospital, London, MPN Clinical Trials Portfolio
      • MPN Voice supported trials
      • Mosaicc
      • Vorinostat Phase II Study Results
      • CMML (Chronic Myelomonocytic Leukaemia) MONOCLE Study
    • For Health care professionals
  • Living With MPNs
    • Real Stories
    • I Am…
    • Treatment decisions
    • Talking with your doctor
    • Everyday Challenges
      • Everyday Challenges
      • Contraceptives and HRT
      • Deep Vein Thrombosis
      • Fighting fatigue
      • Renewing Intimacy
      • Coping with side effects
      • If you need surgery
      • Itchy skin
    • Your state of mind
      • Your state of mind
      • What you may be feeling
      • Looking well but feeling awful
      • Communicating feelings
      • Coping long-term
    • Blood Clots
      • After a blood clot
      • After a serious clot
      • End-of-life
      • Hospice care
      • Reducing pain and symptoms – palliative care
    • Ways to feel better
      • Ways to feel better
      • Complementary therapies
      • Reflexology and massage therapy
      • Relaxation podcasts for people with MPNs
      • Staying active
      • Eating well
      • Keeping track of symptoms
      • Reducing stress
      • Know the warning signs
      • Staying well
    • Pregnancy
      • MPNs in pregnancy
      • Planning before pregnancy
      • During pregnancy
      • Miscarriage
    • Practical advice
      • Practical advice
      • Cost of medications – exemption certificate
      • Employment rights
      • Travel information
      • Planning for travel
      • MPN Alert Cards
      • Living abroad
  • Get Involved
    • How To Get Involved
    • Events
    • Patients forums
    • Buddy Programme
      • About the Buddy Programme
      • Join the programme
    • Donate
    • Fundraising
      • Fundraise
      • Design your own event
      • Upcoming fundraising events
      • Fundraising Heroes
      • Past fundraisers
    • Volunteer
    • Advocacy
      • Advocacy
      • HealthUnlocked
  • My MPN Voice App
    • Learn more about MY MPN VOICE APP
    • Overview of the My MPN Voice App – with Study and without Study
    • Next Steps – Stages, Sign Up & Support
    • FAQs – GSTT Study App and Wearables
  • Contact
    • Contact Us
    • Submit a story
    • Join our mailing list
  • COVID-19
    • Autumn 2023 COVID booster campaign confirmed
    • Fast access to COVID medicines for people with blood cancer
    • 4th dose COVID vaccination for people with MPNs
    • COVID-19 Vaccine for people with MPNs
    • Coronavirus (COVID-19) Advice and Information
    • COVID-19 and Day-to-Day Life: making decisions about your risk of exposure
    • Emotional and well-being advice
    • Webinar Videos
    • Podcasts- Relaxation podcasts for people with (MPNs)
    • Donation Appeal
    • MPN Alert Cards

Daily Archives: August 23, 2024

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PEN Webinar: Elevate what you should know about your role in MF treatment and care decisions 11 Sep 24

NewsBy Maz CdAugust 23, 2024

PEN (Patient Empowerment Network) is hosting an ELEVATE Myelofibrosis webinar entitled ‘Elevate what you should know about your role in MF treatment and care decisions’ on 11th September 2024 at 1 pm ET (10 am PT, 12 pm CT) please note these timings are for the USA. How can you elevate your overall myelofibrosis care…

PEN Webinar: HCP Roundtable: advancing practice and enhancing MPN care 17 Sep 24

NewsBy Maz CdAugust 23, 2024

PEN (Patient Empowerment Network) is hosting a webinar entitled ‘HCP Roundtable; advancing practice and enhancing MPN care’ on 17th September 2024 at 1 pm ET (10 am PT, 12 pm CT) please note these timings are for the USA How can healthcare providers overcome current challenges to enhance the management and outcomes of myelofibrosis (MF),…

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