Real stories

There are many challenges to living with a myelproliferative neoplasm (MPN). For some it may be quite straight forward but for some it may bring feelings of being isolated, lonely, confused and frustrated.

Here are a selection of life stories from MPN patients from various backgrounds and ages. We always welcome stories which share MPN experiences or encourage other patients or their families who are at different parts of their life journey of living with a chronic disease like MPN. If you have a story to share please email

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