Streamed live online (via Zoom) – Wednesday 25th August 2021, 4 – 7.30 pm
This forum is now fully booked, however, there is a waiting list in operation, please continue to register and you will be placed on the waiting list, when cancellations are received, places will be offered to those people on the waiting list.
This MPN Voice ‘virtual’ patients’ forum is being hosted by the Guy’s and St Thomas’ Hospital team and will feature updates on COVID vaccination, updates on the MOSAICC study and a special lecture from Professor Vannucchi on historical aspects of MPN, talks from two patient speakers, and a live panel Q&A session to which you can submit questions in advance and on the day. There will also be a live session for breakout groups for ET, PV and MF, for the audience to meet and chat in breakout rooms to discuss everyday challenges and swap tips, each group will be chaired by members of medical team. A copy of the programme can be downloaded here.
An on-demand video of the full event (excluding the breakout groups) will be available post-forum on the MPN Voice YouTube channel.
Live Q&A session, the medical team will answer questions from the audience, questions can be submitted in advance via the Eventbrite registration form or by email to email@example.com, and on the day via the webinar ‘chat’ facility. Please be aware that the panel/medical team cannot comment on or reply to individual cases, do not send in any test results with your questions, replying to questions on the day is not an alternative to your ongoing medical relationship with your own consultant or GP, so do try to ask general questions and don’t be disappointed if the panel/medical team do not give specific medical advice to you. There may not be time during the session to answer all the questions submitted, the team will reply to all unanswered questions by email.
Register to attend – You are required to register to attend this forum, use the link below, you will be redirected to Eventbrite, once you have registered you will receive an email containing all the details to join the forum. Spaces are limited so please book as soon as possible to avoid disappointment.
Feedback – we would be grateful if you could take a few minutes at the end of the forum to complete a feedback survey, this will let us know what we are doing right and wrong and enable us to make changes. The link will also be sent to you after the forum and will be available on the forum ‘chat’ panel.