***FULLY BOOKED*** registration is now closed for this forum
Streamed live online (via Zoom) – Monday 21st June 2021, 4 – 7 pm
This MPN Voice ‘virtual’ patients’ forum is being hosted by Prof Tim Somervaille, The Christie NHS Foundation Trust, Manchester, Dr Rachel Brown, Manchester Royal Infirmary, and Dr Rowena Thomas-Dewing, Salford Royal NHS Foundation Trust. It will feature updates on ET, PV and MF, a talk from a PV patient, and a live panel Q&A session to which you can submit questions in advance and on the day. There will also be a live session for breakout groups for ET, PV and MF, for the audience to meet and chat in breakout rooms to discuss everyday challenges and swap tips, each group will be chaired by members of the medical team. There will not be a family and friends group at this forum.
Live Q&A session, the medical team will answer questions from the audience, questions can be submitted in advance via the Eventbrite registration form or by email to firstname.lastname@example.org, and on the day via the webinar ‘chat’ facility. Please be aware that the panel/medical team cannot comment on or reply to individual cases, do not send in any test results with your questions, replying to questions on the day is not an alternative to your ongoing medical relationship with your own consultant or GP, so do try to ask general questions and don’t be disappointed if the panel/medical team do not give specific medical advice to you. There may not be time during the session to answer all the questions submitted, the team will reply to all unanswered questions by email.
Programme – a copy of the programme can be viewed/downloaded here…
Register to attend – You are required to register to attend this forum, use the link below, you will be redirected to Eventbrite, once you have registered you will receive an email containing all the details to join the forum. This is a free event.
Everyone is welcome to register to attend this forum, regardless of where you live.
An on-demand video of the forum will be available post-forum on the MPN Voice YouTube channel. (this will exclude the breakout groups)
Feedback – we would be grateful if you could take a few minutes at the end of the forum to complete a feedback survey, this will let us know what we are doing right and wrong and enable us to make changes. The link will be sent to you after the forum and will be available on the forum ‘chat’ panel.