MPN Voice YouTube videos


MPN Voice YouTube channel, where you can find videos of leading MPN experts from around the world talking about living with MPNs; trials; medications; forums etc, and also videos of people who have a MPN talking about their own journey with their MPN.  

(by clicking on each highlighted link you will be redirected to the video on our YouTube channel.  MPN Voice cannot be held responsible for any content on YouTube that has not been uploaded by MPN Voice which may cause offence or distress and may contain inappropriate content, any such content should be reported to YouTube)

Living with MPNs Day - Saturday 18th November 2017 in London


INTERVIEWS

 
Recent scientific advances in MPNs - Prof Adam Mead discusses his presentation

Highlights from the Living with MPNs Day - Prof Claire Harrison shares her highlights

Treating with Ruxolitinib - Prof Claire Harrison discusses treating patients with Ruxolitinib

Working with your healthcare team - Theresa Peters, Macmillan Haematology Clinical Nurse Specialist discusses the importance of working with your healthcare team

How MPN patients and researchers are working together - Prof Ruben Mesa discusses the partnership between patients and the research community

Insights from the myelofibrosis (MF) discussion session - Prof Ruben Mesa shares insights from the discussion

Personal highlights about the day - Prof Ruben Mesa shares his personal highlights about the Living with MPNs day

Who are MPN Voice? - Nona Baker, MPN Voice, provides an introduction to MPN Voice, its activities and the impact it has on patients

Where will we be in 5 years? - Prof Mary Frances McMullin discusses how the diagnostic processes will develop over the next 5 years 

What have we learned from the MOSAICC Study so far - Prof Mary Frances McMullin provides an update of the study, looking into the epidemiology of MPNs

Advice for fellow patients - Emily Bainbridge, patient speaker, shares her advice to other MPN patients 

The importance of community support - Emily Bainbridge, patient speaker, discusses the importance of having the support of the patient community

Emily's SCT story - Emily Bainbridge, patient speaker, shares the story of her MPN diagnoses, her treatment journey and how this has impacted her life

Treating with Hydroxycarbamide/Hydroxyurea - Prof Claire Harrison discusses Hydroxycarbamide/Hydroxyurea in the treatment of ET and PV, including the side effects

Eleanor's PV story - Eleanor, patient speaker, shares her PV diagnosis, treatment journey and how her life has been impacted

Positive impact of MPN Voice - Eleanor, patient speaker, explains how MPN Voice has positively impacted on her life

Eleanor's fundraising challenge - Eleanor, patient speaker, is challenging herself with a 50 mile swim to raise funds for MPN Voice 


Presentations from the Living with MPNs Day - Saturday 18th November 2017

Recent scientific advances, including CRISPR - Prof Adam Mead 

How do we assess prognosis in MPN - Prof Allesandro M Vannucchi 

Bone marrow: what's in it and how does it work - Dr Bridget Wilkins

MAJIC trial update - Chris Russon, patient speaker

Future plans for MPN care and trials in the UK - Prof Claire Harrison

Patient journey of PV - Eleanor, patient speaker

Patient journey of SCT - Emily Bainbridge, patient speaker

MOSAICC trial update - Prof Mary Frances McMullin

MPN Voice fundraising - Maz Campbell-Drew, MPN Voice 

What does MPN Voice do? - Nona Baker, MPN Voice 

What I learned from my patients with MPN - Prof Ruben Mesa 

Getting the most from your healthcare team - Theresa Peters, Macmillan Haematology CNS

Patient and disease related risk factors for thrombosis - Prof Tiziano Barbui

Living with MPNs - clinician and patient panel discussion - a lively discussion with patients in the audience and online audience and clinicians