About MPN Voice

MPN Voice’s mission is to provide clear and accurate information and emotional support to everyone who has been diagnosed with a myeloproliferative neoplasm (MPN) and their families/friends.

MPN Voice has members across the UK and in many other countries throughout the world. We offer this website, patients’ forums around the UK during the year, and a Peer Support programme to allow people with MPNs to contact others in similar circumstances. We also have an online forum at HealthUnlocked which is a supportive and informative online forum where you can ask questions about anything related to MPNs, and get replies from people who really understand you - people living with a MPN. In addition we produce information leaflets and a newsletter for people with MPNs so that patients are better informed and have more confidence dealing with the management of their condition. MPN Voice also raises money to fund research towards a cure and advocacy for patients. Most of all we aim to offer hope to everyone who has a myeloproliferative neoplasm.

Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.


Real Stories

I am....

Latest News

AdvocacyGet InvolvedNewsWebinars

AOP Orphan MPN Awareness Day – Virtual MPN Breakfast Thursday 9th September

Thursday 9th September 10 – 11.30 am (CET) Dedicated to MPN Awareness Day, AOP Orphan will host a virtual MPN Breakfast.  We warmly invite you to join this live discussion with patients, haemato-oncologists and researchers to raise awareness together! The speakers are: Mr. Thomas Bierfeld, MPN Patient Mrs. Sonja Kato, Moderator Mr. Peter Loffelhardt, MPN…

Read more