Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis…
15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28,…
15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is…
15 March 2016 The 2015 Virgin London Marathon weekend was poignant for me, I spent most of the weekend reading…
09 November 2015 Since Sheena was diagnosed with myelofibrosis (MF), her family and friends are throwing themselves into fundraising…
09 November 2015 Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is…
The language of haematologists is complex. Knowing the lingo can help you find your way in the strange land of myeloproliferative neoplasms (MPNs). When you first learn you have a…
As patients with myeloproliferative neoplasms (MPNs), there’s one thing many of us have in common: we may feel fatigued. But there are solutions available that can give us more energy.…
Some people with myeloproliferative neoplasms (MPNs) feel just fine. If you feel strong, take advantage of this and protect your long-term health by getting active. Not everyone with an MPN…
A coordinated care plan between your haematologist and your obstetrician helps ensure the health of you and your unborn child. Some people are diagnosed with a myeloproliferative neoplasm (MPN) in…
One of the biggest challenges some people face when they have a myeloproliferative neoplasm (MPN) is finding someone to talk with, someone who really understands. Many of us didn’t know…
Myeloproliferative neoplasms (MPNs) are chronic, long-term illnesses, and because they continue through our lives, they can change the way we see ourselves. While many people take their illness in their…
The MPN Voice medical advisory committee wants to share with our community the following: Thrombosis associated with low platelets is an exceedingly rare event in patients receiving the Oxford-AZ COVID vaccine and causal relationship remains unclear. There are no confirmed reports of any specific platelet or thrombosis problems in MPN patients relating to the COVID…
£8.50 per mask £2.50 post and packing per order Our adult mask has three layers: outer layers of poly spandex…
After a careful review of the data, UK and International regulatory agencies confirmed yesterday (18.3.21) that the risk of blood…
The MPN Voice response to the article published on 11th March 2021 on the BBC news channel regarding a study…
We are aware that many of you are not on the Shielded Patient List and have been informed by your…
