Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis…
15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28,…
15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is…
15 March 2016 The 2015 Virgin London Marathon weekend was poignant for me, I spent most of the weekend reading…
09 November 2015 Since Sheena was diagnosed with myelofibrosis (MF), her family and friends are throwing themselves into fundraising…
09 November 2015 Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is…
We need your help – will you share your story on our website? We are currently updating and reviewing the information on our website. The real stories shared by the…
The language of haematologists is complex. Knowing the lingo can help you find your way in the strange land of myeloproliferative neoplasms (MPNs). When you first learn you have a…
As patients with myeloproliferative neoplasms (MPNs), there’s one thing many of us have in common: we may feel fatigued. But there are solutions available that can give us more energy.…
Some people with myeloproliferative neoplasms (MPNs) feel just fine. If you feel strong, take advantage of this and protect your long-term health by getting active. Not everyone with an MPN…
A coordinated care plan between your haematologist and your obstetrician helps ensure the health of you and your unborn child. Some people are diagnosed with a myeloproliferative neoplasm (MPN) in…
One of the biggest challenges some people face when they have a myeloproliferative neoplasm (MPN) is finding someone to talk with, someone who really understands. Many of us didn’t know…
Myeloproliferative neoplasms (MPNs) are chronic, long-term illnesses, and because they continue through our lives, they can change the way we see ourselves. While many people take their illness in their…
This online forum will feature talks from: Claire Woodley, Advanced Nurse Practitioner, Guy’s & St Thomas’ Hospital (GSTT) and Lauren Urwin, Specialist Occupational Therapist, GSTT, and Rachael George, Physiotherapist, GSTT. There will be a Q and A session to which you can submit questions in advance and on the day. Programme Welcome from Nona Baker,…
This was the first in-person forum MPN Voice has held since the end of 2019, it was very well attended…
Antibody and antiviral treatments for people with blood cancer (updated 22 April 2022) People with blood cancer, which does include people…
We have some important and very welcome news to share with you about a new drug for myelofibrosis patients. After…
As of 21 February 2022 the JCVI recommends that people aged 12 and above who have blood cancer – MPN…
