About MPN Voice

MPN Voice’s mission is to provide clear and accurate information and emotional support to everyone who has been diagnosed with a myeloproliferative neoplasm (MPN) and their families/friends.

MPN Voice has members across the UK and in many other countries throughout the world. We offer this website, patients’ forums around the UK during the year, and a Peer Support programme to allow people with MPNs to contact others in similar circumstances. We also have an online forum at HealthUnlocked which is a supportive and informative online forum where you can ask questions about anything related to MPNs, and get replies from people who really understand you - people living with a MPN. In addition we produce information leaflets and a newsletter for people with MPNs so that patients are better informed and have more confidence dealing with the management of their condition. MPN Voice also raises money to fund research towards a cure and advocacy for patients. Most of all we aim to offer hope to everyone who has a myeloproliferative neoplasm.

Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.

Fundraisers

Real Stories

I am....

Latest News

MPN Voice Vlogcasts – In Conversation With …..News

In Conversation with… Mark Taylor, PV patient and MPN Voice volunteer

In Conversation with Mark Taylor, who talks to Nona about his PV and being a volunteer with MPN Voice, building up and maintaining the social media platforms.  Mark begins by telling Nona that as a military air traffic controller he is subject to annual medicals, and following blood tests, he was diagnosed with JAKII positive…

Read more