About MPN Voice

MPN Voice’s mission is to provide clear and accurate information and emotional support to everyone who has been diagnosed with a myeloproliferative neoplasm (MPN) and their families/friends.

MPN Voice has members across the UK and in many other countries throughout the world. We offer this website, patients’ forums around the UK during the year, and a Peer Support programme to allow people with MPNs to contact others in similar circumstances. We also have an online forum at HealthUnlocked which is a supportive and informative online forum where you can ask questions about anything related to MPNs, and get replies from people who really understand you - people living with a MPN. In addition we produce information leaflets and a newsletter for people with MPNs so that patients are better informed and have more confidence dealing with the management of their condition. MPN Voice also raises money to fund research towards a cure and advocacy for patients. Most of all we aim to offer hope to everyone who has a myeloproliferative neoplasm.

Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.


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Latest News

MPN Voice Vlogcasts – In Conversation With …..News

In Conversation With … Orlando Agrippa, Head of Sanius Health, talking about the My MPN Voice App

An extra vlocgast this month with Nona and Orlando talking about the MyMPNVoice App which has been developed in partnership with Sanius Health.  The My MPN Voice App is designed to allow people living with MPNs to be able to capture their quality of life (QoL) data on a daily, weekly or monthly basis, to…

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