App Objective

  • To provide a one-stop shop for recording MPN-related information and empowering proactive disease self-management
  • To provide the effective way to manage MPNs by helping to easily track symptoms and providing direct access to further information about MPNs
  • To empower MPN patients to easily record and recall information about the effects of their MPN and treatments, which the medical community can later use to improve treatment approaches
  • To increase the quality of life of people affected by MPN by giving them another way to interact with one another through digital experiences and raising awareness of MPNs through signposting and sharing

Study Title | A Prospective Digital Monitoring Project Exploring Physical Activity and Patient Reported Outcome Measures In Individuals With Myeloproliferative Neoplasms

Brief summary

Guy’s and St Thomas’ in partnership with and Sanius Health and MPN Voice, would like to invite you to participate in our research study.  We are hoping to explore whether a smartphone application (app) designed to track and monitor your health, could potentially improve your symptom management and quality of life as an MPN patient.  We genuinely want to understand the impact it can have on your well-being.

A small number of participants will also be invited to take part in a sub-study, where additional health data from a wearable device will be collected, including sleep quality, physical activity, and more.

Dr Patrick Harrington, Chief Investigator, Guy’s and St Thomas’ NHS Foundation Trust

Professor Claire Harrison, Research Team