3rd dose COVID vaccination for MPN patients
As you will be aware the government has launched a 3rd dose of COVID vaccination for selected patients who may not have mounted an adequate response to the first two…
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AOP Orphan MPN Awareness Day – Virtual MPN Breakfast Thursday 9th September
Thursday 9th September 10 – 11.30 am (CET) Dedicated to MPN Awareness Day, AOP Orphan will host a virtual MPN Breakfast. We warmly invite you to join this live discussion…
MPN Advocates Network (MPNAN) Webinar – Changing the Conversation Around MPNs
Thursday 9th September 3 pm (CET) The MPN Advocates Network is a group of MPN patient organizations dedicated to MPN patient advocacy. This webinar taking place on MPN Awareness Day…
MyeloidScan – Long COVID in patients with myeloid blood cancers
Have you had COVID 19 infection? We need to find out more about how long covid affects people like you – can you help us? We would like to share…
An evening of Traditional Music from Ireland
The concert was recorded specially for MPN Voice with well known musicians from Ireland playing tunes and singing songs, in their own homes, and in The Cobblestone Pub in Dublin,…
Looking after yourself
In this video, Dr Abbie Wickham discusses the psychological impact of Covid-19 among the MPN community and how to resolve these stresses.
Coronavirus and MPNs – An update webinar
An update for MPN patients recorded on 22 May 20. Profs Claire Harrison & Adam Mead, Dr Donal McLornan & CNS Claire Woodley give an update on how COVID-19 is…
Coronavirus and MPNs webinar dated 29 April 2020
Consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley discuss the Government guidance for people with MPNs. Including questions from the…
Abseil 2016
On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over…
Peer ‘buddy’ support
Maz talks about how a buddy really helped her when she was diagnosed with ET
Marilyn, the MPN Voice Fundraising Co-Ordinator
Marilyn tells us in this video why she wanted to be part of the Fundraising Team
Tips on ways to overcome some side effects of PV
Louise shares some tips that have helped her overcome some of the side effects of PV (polycythaemia vera)
Chris and BMT (bone marrow transplant)
Chris shares his experience of a BMT also known as SCT (stem cell transplant).
Fundraising for MPN Voice
John took part in the 2015 Virgin London Marathon in aid of MPN Voice
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 4
Video 4 – Essential Thrombocythaemia update
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 3
Video 3 – Polycythaemia Vera update
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – part 2
Video 2 – Myelofibrosis update
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 1
Video 1 – Treatment and Management of MPNs
Bone marrow transplant (BMT) as a treatment option for patients with Myelofibrosis (MF)
Dr Ruben Mesa and Dr Veena Fauble, haematologists at the Mayo Clinic discuss bone marrow transplant (BMT) as a treatment option for patients diagnosed with Myelofibrosis.
Interview with Rachel
Rachel talks about how having essential thrombocythaemia (ET) has impacted her life and how she’s making a contribution by fundraising.
An Overview of Myelofibrosis (MF)
Leading MPN specialists give an overview of the symptoms patients with MF may suffer from.
Interview with John
John, a cyclist, talks about his diagnosis with polycythaemia vera (PV) and how he’s stayed active and fit in spite of PV.
Myelofibrosis
Albert talks about living with myelofibrosis (MF) and taking a JAK2 inhibitor drug currently under trial.