Autumn 2023 COVID booster campaign confirmed
Attention everyone! The government has confirmed there will be an Autumn 2023 COVID booster campaign. Those eligible for an Autumn 2023 booster are: All adults aged 65 years and over…
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video of the MPN Voice patients’ virtual forum, London – updates and latest research from the ASH annual meeting
This online forum focussed on updates and latest research in MPNs from the ASH (American Society of Hematology) annual meeting held in Dec 2022. The talks were presented by: Professor…
Royal Parks Half Marathon 2023
The Royal Parks Half Marathon is one of the most beautiful half marathons in the running calendar. Date: Sun 8 Oct 2023 Location: Central London The stunning 13.1-mile route runs…
St Thomas’ Abseil 2023
The thrilling St Thomas’ Abseil Calling all thrill seekers! Dates: Fri 22 Sep 2023 and Sat 23 Sep 2023 Times: 09:30 – 18:30 Location: St Thomas’ Hospital, North Wing Booking…
video of the MPN Voice patients’ virtual forum, London, 12 Jan 23 – Menopause, HRT and MPNs
The video of the MPN Voice patients’ ‘virtual’ forum, held on Thu 12 Jan 23, is now available to view. This online forum focused on Menopause, HRT and MPNs, with…
Fundraising Team Christmas message 2022
The MPN Voice Fundraising Team would like to say a huge THANK YOU to everyone who took part in fundraising events and made donations in 2022, and to all your…
Fast access to COVID medicines for people with blood cancer
Antibody and antiviral treatments for people with blood cancer (updated 22 April 2022) People with blood cancer, which does include people with a MPN (who are taking medication for their MPN…
4th dose COVID vaccination for people with MPNs
As of 21 February 2022 the JCVI recommends that people aged 12 and above who have blood cancer – MPN – should have five vaccine doses (three primary doses and…
MyeloidScan – Long COVID in patients with myeloid blood cancers
Have you had COVID 19 infection? We need to find out more about how long covid affects people like you – can you help us? We would like to share…
3rd dose COVID vaccination for MPN patients
As you will be aware the government has launched a 3rd dose of COVID vaccination for selected patients who may not have mounted an adequate response to the first two…
Looking after yourself
In this video, Dr Abbie Wickham discusses the psychological impact of Covid-19 among the MPN community and how to resolve these stresses.
Coronavirus and MPNs – An update webinar
An update for MPN patients recorded on 22 May 20. Profs Claire Harrison & Adam Mead, Dr Donal McLornan & CNS Claire Woodley give an update on how COVID-19 is…
Coronavirus and MPNs webinar dated 29 April 2020
Consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley discuss the Government guidance for people with MPNs. Including questions from the…
Abseil 2016
On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over…
Peer ‘buddy’ support
Maz talks about how a buddy really helped her when she was diagnosed with ET
Marilyn, the MPN Voice Fundraising Co-Ordinator
Marilyn tells us in this video why she wanted to be part of the Fundraising Team
Tips on ways to overcome some side effects of PV
Louise shares some tips that have helped her overcome some of the side effects of PV (polycythaemia vera)
Chris and BMT (bone marrow transplant)
Chris shares his experience of a BMT also known as SCT (stem cell transplant).
Fundraising for MPN Voice
John took part in the 2015 Virgin London Marathon in aid of MPN Voice
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 4
Video 4 – Essential Thrombocythaemia update
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 3
Video 3 – Polycythaemia Vera update
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – part 2
Video 2 – Myelofibrosis update
Update from The 56th American Society of Hematology (ASH) December 2014 meeting held in San Francisco – Part 1
Video 1 – Treatment and Management of MPNs
Bone marrow transplant (BMT) as a treatment option for patients with Myelofibrosis (MF)
Dr Ruben Mesa and Dr Veena Fauble, haematologists at the Mayo Clinic discuss bone marrow transplant (BMT) as a treatment option for patients diagnosed with Myelofibrosis.
Interview with Rachel
Rachel talks about how having essential thrombocythaemia (ET) has impacted her life and how she’s making a contribution by fundraising.
An Overview of Myelofibrosis (MF)
Leading MPN specialists give an overview of the symptoms patients with MF may suffer from.
Interview with John
John, a cyclist, talks about his diagnosis with polycythaemia vera (PV) and how he’s stayed active and fit in spite of PV.
Myelofibrosis
Albert talks about living with myelofibrosis (MF) and taking a JAK2 inhibitor drug currently under trial.