Your donations allow us to meet the needs of people with myeloproliferative neoplasms (MPNs). At MPN Voice we strive to help people with MPNs to live the best lives they can.
Education and support make up about half our annual investment. Starting in 2009 we began to invest in drug research, with the trial of the drug vorinostat in people with essential thrombocythaemia (ET) and polycythaemia vera (PV). In 2011 we offered grants to researchers for both baseline and drug research and in 2013 we funded the first part of the the MOSAICC epidemiology study for MPNs, we are continuing to support this study with annual grants. In recent years we have also been able to contribute to the funding towards the Mithridate trials and Covid vaccine studies.
At MPN Voice we rely entirely upon donations and fundraising from individuals, trusts and various companies.
In the past year, funding to support MPN Voice activities has been granted by the following pharmaceutical companies:
Inycte Biosciences UK Ltd
MPN Voice would like to thank each of these companies, whose generous support ensures that the variety and quality of support for the MPN community can continue as a source of information, education and self-help to all those who need it.
We use your donations for various activities including:
- Online and face to face patients’ forums for 100 people – £1,500 – £3,000
- Hire a research assistant or nurse for one day a week to support trials of new drugs – £10,000 per annum
- Produce disease and drugs leaflets £6,000 per annum
We can all be fundraisers – from organising events to supporting others, there are lots of ways you can support our fundraising including making a donation, a gift in memory or planning to leave a gift in your Will – please make a gift today using your debit or credit card via the MPN Voice JustGiving page.
If you would like to receive ideas for fundraising on behalf of MPN Voice, please email email@example.com.
If you would like information regarding leaving a gift/legacy in your Will, please email firstname.lastname@example.org.