COVID-19 Vaccine for people with MPNs
COVID-19 Vaccine for people with MPNs (updated 11th Jan 2021) Having an MPN and any MPN treatment is not a contraindication to receiving the vaccine. Patients with MPN are in…
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ANNOUNCING THE LAUNCH OF OUR NEW WEBSITE
We are extremely excited to announce the launch of our newly designed MPN Voice website on December 4th, 2020. Our previous website, developed in 2014, was done so using a…
Virtual patients’ forum from London Sat 1st August
This MPN Voice patients’ forum is hosted by the Guy’s team and will feature updates on both COVID and MPN research, as well as tips as we move forward. We…
Forums postponed
Due to the current situation regarding Coronavirus (COVID-19) we have decided to postpone the forums in Chippenham, Oxford and Galway, we hope to rearrange them later this year. At the…
Four forums announced for 2020
We are very pleased to announce details for four forums to be held in: Chippenham Oxford Galway, Ireland Chester We are currently arranging other forums in locations around the UK,…
Jonathan & Pippa Wallis – Fastnet Race THEY MADE IT!
Jonathan and Pippa have made it, they have arrived in Plymouth aboard their yacht Sheevra, they have successfully completed the Rolex Fastnet Race 2019. Well done both of you and…
Jonathan & Pippa Wallis – Fastnet Race Day 4 Tue 6 Aug
Day 4 Tue 6 Aug 19 at 07:30 hrs update from Jonathan and Pippa Ireland in sight. Long long best across rough Celtic sea. Hope to round Fastnet by midday.…
Jonathan & Pippa Wallis – Fastnet Race day 2 news Sun 4 Aug
Day 2 of The Fastnet Race update from Jonathan and Pippa aboard Sheevra Just in phone range off Salcombe. Frustrating night with 6 hours no wind at all. Now bowling…
Jonathan & Pippa Wallis – Fastnet Race latest news Fri 02 Aug
The boats taking part in the Fastnet Race are in Cowes and getting ready to set sail on Sat 3 August, including Sheevra, the boat being sailed by Jonathan and…
The Fastnet Race has started Sheevra and her crew are on their way!
Saturday 3 August the Fastnet Race has started Update from Jonathan and Pippa – we started the race at 13:00 hrs, in a mass of boats including some awesome machines,…
Farewell and Bon Voyage to Dr Jonathan Wallis
Many of you will know Dr Jonathan Wallis who has been a Consultant Haematologist at the Freeman Hospital, Newcastle-upon-Tyne for many years. He has also been a member of the…
NUTRIENT Trial – survey
Professor Ruben Mesa, MD, Dr Robyn Scherber MD, and Dr Angela Fleischman MD, of the Mayo Clinic in Arizona invite you to participate in their survey, the NUTRIENT Trial. This…
Top Line Results from PERSIST-2 Phase 3 Trial of Pacritinib
CTI Biopharma have issued the top-line results of the PERSIST-2 study, which you can read here… Professor Claire Harrison says of the results: I am very happy to see these positive…
NICE Final guidance: Myelofibrosis – ruxolitinib (review of TA289) [831]
We are happy to share with everyone a very positive outcome from the NICE review of ruxolitinib. Particular thanks to everyone who responded to information requests, our patient attendees, patient…