In this vlogcast, Nona sits down with young patient Rosie to talk about her journey following an MPN diagnosis at age 28.
Rosie shares her experiences with navigating the path to diagnosis, managing symptoms like extreme fatigue and brain fog, adjusting to life on “Active Monitoring” (Watch and Wait), and finding invaluable support through the MPN Voice community.
It’s an honest, reassuring conversation that highlights why no one has to face an MPN alone.
We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk. If you have any suggestions for future conversations please let us know.
We would like to thank Rosie for taking part in the vlogcast with Nona.
Donate to MPN Voice – MPN Voice would not exist without donations, fundraising and grants, we are kindly asking everyone to be as generous as they can to help us support our ongoing projects supporting the MPN patient and healthcare communities. We would be very grateful for your support with a donation to MPN Voice which you can make via the MPN Voice JustGiving page, thank you.
