Join Nona Baker as she speaks with members of the expert clinical team who supported the MPN Voice Northern Patients’ Day on 4 July 2026. In this special video, the team reflects on the event, discusses the importance of bringing patients and healthcare professionals together, and shares valuable insights into the latest developments in MPN…
Interferon Shortage Update: Your Questions Answered! Are you feeling anxious about the recent interferon supply challenges or navigating a switch in your medication? You aren’t alone. We know how much uncertainty this has caused, so Nona Baker sat down with Dr Priya Sriskandarajah and Dr Alesia Khan to get the answers you need. They provide…
Maz has been the administrator for MPN Voice for almost 17 years, she talks to Nona about her time with MPN Voice and how she will be spending her retirement indulging in her passion for knitting, sewing, reading and learning new skills like weaving and spinning, and going on adventures with her partner Pete and…
A vlogcast with Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London and Nona Baker, Co-Chair MPN Voice. This vlogcast highlights key developments in the MPN (Myeloproliferative Neoplasms) field, shared by Professor Claire Harrison, focusing on the American Society of Hematology (ASH) conference and MPN Voice’s 2025 achievements. Key points include: ASH Conference Updates: Advances…
In Conversation with Tobe Aleksander, who updates Nona, one year on from their first conversation, about her participation in the Mithridate Study. This is part 2 of a series of 3 conversations that Tobe and Nona will have about Tobe’s experiences on the study – part 1 enrolling and starting the study; part 2 mid-way…
In this vlogcast, Dr Jack Waldman shares his talk/presentation – Psychological Impact of MPNs – which he presented at the Patients’ Forum held in Inverness on Wednesday 3 September 2025. In this talk, Dr Waldman discusses the psychological impacts of living with myeloproliferative neoplasms (MPN). He covers common emotions people experience after diagnosis, such as…
Pegylated Interferon Alpha – Supply & Commissioning Update We are very pleased to let you know that the recent shortage of Pegasys interferon has now been resolved, and hospitals are beginning to receive normal supplies again. While Pegasys was in short supply, some people were prescribed a different interferon called Besremi to make sure treatment…
The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the new study on thrombosis risk in MPN patients using QRISK3 Score. Dr Harrington explains the research the team at Guy’s Hospital have done to see if a new way of assessing patients’ risk of thrombosis (clotting) called QRISK3, could be…
In this vlogcast, Neil shares his personal journey living with a MPN, beginning with his diagnosis of ET in 1994 and progressing to MF in 2023. He speaks candidly about the emotional and physical toll of his MPN, his experiences with treatment, and the ongoing decision-making process around a potential stem cell transplant. Their candid…
In this vlogcast, Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London, speaks with Nona about considerations for MPN patients when travelling away from their home city and how to be prepared and cope with change if events cause disruption to travel. Overall, the discussion emphasizes resilience, practical planning and mental well-being to help MPN…