We are aware that some countries may be experiencing a shortage in the supply of Pegasys Interferon and would like to reassure you various UK Health Bodies and MPN experts have this under review and that it is not an immediate problem in the UK. We will update further once we have more information.
Were you diagnosed with an MPN (Myeloproliferative Neoplasm) before the age of 40? We want to hear from YOU! Your experiences are invaluable in helping us improve our resources and support for young MPN patients. Please share your thoughts on our latest leaflet – read here – and take just 2 minutes to complete our…
In Conversation with Mark Taylor, who talks to Nona about his PV and being a volunteer with MPN Voice, building up and maintaining the social media platforms. Mark begins by telling Nona that as a military air traffic controller he is subject to annual medicals, and following blood tests, he was diagnosed with JAKII positive…
Tuesday 6 August 2024, 1 – 5 pm (arrival/registration from 1 pm with complimentary buffet lunch) Venue: Mercure Nottingham Sherwood Hotel, 296 Mansfield Road, Nottingham NG5 2BT THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you attend, if you are willing…
Monday 2 September 2024, 10.30 am – 3.30 pm (arrival/registration from 10.30 with complimentary refreshments). A complimentary buffet lunch will be served during the forum. Venue: Malmaison Hotel Dundee, 44 Whitehall Crescent, Dundee, DD1 4AY THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or…
Wednesday 27 November 2024, 4 – 8 pm (arrival/registration from 4 pm with complimentary light buffet and refreshments) Venue – Clayton Hotel Cardiff, St Mary Street, Cardiff, CF10 1GD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you attend, if you…
Friday 6 December 2024, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch and refreshments) Venue – voco Grand Central Hotel, 99 Gordon Street, Glasgow, G1 3SF THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you…
Make it your challenge, your way, choose between 100km, 50km half challenge or 25km quarter challenge. Date: Sat 7 Sep 2024 – Sun 8 Sep 2024 Location: The South Downs Way Distance: 25, 50 and 100 km Take on some of England’s finest scenery as a walk, jog or a run! An Eastbourne start, up…
Date: Sat 14 Sep 2024 Location: Putney Bridge Distance: 25, 50, 75 and 100 km Walk across the Capital taking in unrivalled views of the skyline from its best vantage point, join 2000 trekkers as they walk across the Capital, starting out from Putney Bridge – it’s East towards the City, zig-zagging over the array…
Calling all thrill seekers to take part in the most popular event in the MPN Voice fundraising calendar. This iconic event abseiling 160 feet down the side of St Thomas’ Hospital gives unforgettable views of London’s landscape and creates memories you will cherish forever! It takes place during Blood Cancer Awareness Month, making the challenge…