Young Patient Network

MPN Voice has launched a young patient network and on Sunday 2nd April we held our first virtual meeting! It was a fantastic event, and we were thrilled to see so many young patients attending from the UK and around the world. The main part of the meeting was a breakout session, facilitating discussion between…

In Conversation With … CNS Avril Gleeson

In Conversation With … CNS Avril Gleeson, Haematology Clinical Nurse Specialist, Mercy University Hospital, Cork, Ireland, who talks to Nona about the telephone clinic for reviewing MPN patients, which was set-up before the COVID pandemic, and the benefits for the patients, particularly patients  who have challenges travelling to the hospital, or patients who are working…

In Conversation With … Dr Nauman Butt

In Conversation With … Dr Nauman Butt, Consultant Haematologist, The Clatterbridge Cancer Centre, Liverpool, who talks to Nona about side effects of MPNs and medications, particularly skin complications of itch (pruritus) and skin cancers.  Dr Butt talks about the increased risk factors for skin cancers (non-melanomas) for MPN patients from sun exposure and some treatments,…

Christmas message 2022

Hello everyone It’s that time of year again for the round-up of the MPN Voice year, and once again it has been an amazing year, we started off the year with some uncertainty and trepidation about COVID and end it on a much more positive note. With the easing of the COVID restrictions life was…

MPN Voice Recipe Book

MPN Voice provides support to patients and their families across the world who have been diagnosed with rare blood cancers called Myeloproliferative Neoplasms. The chronic nature of these diseases mean that it is very important for those affected to maintain a healthy lifestyle and look after their general wellbeing. Nutrition plays a key role and…