We are aware that some countries may be experiencing a shortage in the supply of Pegasys Interferon and would like to reassure you various UK Health Bodies and MPN experts have this under review and that it is not an immediate problem in the UK. We will update further once we have more information.
Were you diagnosed with an MPN (Myeloproliferative Neoplasm) before the age of 40? We want to hear from YOU! Your experiences are invaluable in helping us improve our resources and support for young MPN patients. Please share your thoughts on our latest leaflet – read here – and take just 2 minutes to complete our…
In Conversation with Mark Taylor, who talks to Nona about his PV and being a volunteer with MPN Voice, building up and maintaining the social media platforms. Mark begins by telling Nona that as a military air traffic controller he is subject to annual medicals, and following blood tests, he was diagnosed with JAKII positive…
Tuesday 6 August 2024, 1 – 5 pm (arrival/registration from 1 pm with complimentary buffet lunch) Venue: Mercure Nottingham Sherwood Hotel, 296 Mansfield Road, Nottingham NG5 2BT THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you attend, if you are willing…
Monday 2 September 2024, 10.30 am – 3.30 pm (arrival/registration from 10.30 with complimentary refreshments). A complimentary buffet lunch will be served during the forum. Venue: Malmaison Hotel Dundee, 44 Whitehall Crescent, Dundee, DD1 4AY THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or…
Wednesday 27 November 2024, 4 – 8 pm (arrival/registration from 4 pm with complimentary light buffet and refreshments) Venue – Clayton Hotel Cardiff, St Mary Street, Cardiff, CF10 1GD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you attend, if you…
Friday 6 December 2024, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch and refreshments) Venue – voco Grand Central Hotel, 99 Gordon Street, Glasgow, G1 3SF THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE You are welcome to attend this forum regardless of where you live or which hospital you…
In Conversation with the My MPN Voice app team – Dr Patrick Harrington, Debbie Street and Mark Taylor. The team talk to Nona about the recently launched My MPN Voice app: the objectives and goals of the app and associated research study that patients will be taking part in, via the app and the wearable…
PEN (Patient Empowerment Network) is hosting an EPEP myelofibrosis webinar entitled “HCP Roundtable: Breaking Through Myelofibrosis Practice Barriers” on 26 June at 1pm ET (10 AM PT, 12 PM CT). What are the nuanced challenges and practice barriers in myelofibrosis care? How do patient socioeconomic factors impact treatment access? How can HCPs enhance patient-centric care in myelofibrosis for…
The video of the MPN Voice patients’ virtual forum, held on Thursday 16 May 2024, is now available to view. This online forum focussing on the My MPN Voice App features presentations from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Patrick Harrington, Guy’s & St Thomas’ NHS FT; ANP Claire Woodley, Guy’s…