After a careful review of the data, UK and International regulatory agencies confirmed yesterday (18.3.21) that the risk of blood clots after COVID vaccination is no greater than that seen in the general population at large. We encourage all MPN patients to get vaccinated and to continue their medications around the time of vaccination. There…
The MPN Voice response to the article published on 11th March 2021 on the BBC news channel regarding a study assessing the effectiveness of the Pfizer vaccine and cancer patients – ‘Cancer patients are much less protected against COVID-19 than other people after one dose of the Pfizer vaccine, the first real-world study in this…
We are aware that many of you are not on the Shielded Patient List and have been informed by your GP surgery that you will not be included in group 4 for the COVID vaccine. To be added to the shielded patient list by your GP you can take a copy of this ‘GP letter…
COVID-19 Vaccine for people with MPNs (updated 11th Jan 2021) Having an MPN and any MPN treatment is not a contraindication to receiving the vaccine. Patients with MPN are in group 4, or higher priority if older. For information regarding prioritisation of vaccination use this link. If you are taking an anticoagulant, e.g., warfarin, rivaroxaban,…
We are extremely excited to announce the launch of our newly designed MPN Voice website on December 4th, 2020. Our previous website, developed in 2014, was done so using a Content Management System (web development software package) that rather frustratingly is to be phased out in February 2021. We have embraced this challenge and taking…
This MPN Voice patients’ forum is hosted by the Guy’s team and will feature updates on both COVID and MPN research, as well as tips as we move forward. We have colleagues from Scotland, Ireland and Wales joining us to reflect regional differences across the UK. You are required to register for this online forum.…
Due to the current situation regarding Coronavirus (COVID-19) we have decided to postpone the forums in Chippenham, Oxford and Galway, we hope to rearrange them later this year. At the present time the forum in Chester on Fri 25th September is still going ahead.
We are very pleased to announce details for four forums to be held in: Chippenham Oxford Galway, Ireland Chester We are currently arranging other forums in locations around the UK, details will be announced as soon as we have them.
Jonathan and Pippa have made it, they have arrived in Plymouth aboard their yacht Sheevra, they have successfully completed the Rolex Fastnet Race 2019. Well done both of you and many congratulations.
Day 4 Tue 6 Aug 19 at 07:30 hrs update from Jonathan and Pippa Ireland in sight. Long long best across rough Celtic sea. Hope to round Fastnet by midday. Track the progress of Sheevra GBR2421 as they round the famous Fastnet Rock and lighthouse. Fastnet Rock, or simply Fastnet is a small islet in the Atlantic Ocean…