As you will be aware the government has launched a 3rd dose of COVID vaccination for selected patients who may not have mounted an adequate response to the first two doses. Separately adults over 50 years and those in original vaccine groups 1-9 are to be offered a so-called booster dose. The type of vaccine…
MPN Voice is committed to providing health care information and support through a variety of channels. Please can you take some time to help us to understand your communication preferences for receiving information about MPNs. All answers will be anonymous and we will use the results to develop the support needed to MPN patients and…
We need your help – will you share your story on our website? We are currently updating and reviewing the information on our website. The real stories shared by the MPN Community are an important section where new patients and their families can be informed and encouraged by stories of how different people are living…
We would like to thank everyone who completed the MPN COVID-19 vaccination survey in March. The survey was conducted by the teams at Guy’s & St Thomas’ Hospital to assess the various aspects regarding COVID vaccines in people with MPNs, including their opinions and experiences regarding vaccination which is of major interest to aid future…
Researchers at Guy’s and St Thomas’ NHS Foundation Trust are carrying out research to investigate how patients with MPN and also CML respond to vaccination against Covid-19. They would like to recruit patients with a known MPN – who have either not yet received a second dose OR are less than 6 weeks from second…
The MPN Voice medical advisory committee wants to share with our community the following: Thrombosis associated with low platelets is an exceedingly rare event in patients receiving the Oxford-AZ COVID vaccine and causal relationship remains unclear. There are no confirmed reports of any specific platelet or thrombosis problems in MPN patients relating to the COVID…
After a careful review of the data, UK and International regulatory agencies confirmed yesterday (18.3.21) that the risk of blood clots after COVID vaccination is no greater than that seen in the general population at large. We encourage all MPN patients to get vaccinated and to continue their medications around the time of vaccination. There…
The MPN Voice response to the article published on 11th March 2021 on the BBC news channel regarding a study assessing the effectiveness of the Pfizer vaccine and cancer patients – ‘Cancer patients are much less protected against COVID-19 than other people after one dose of the Pfizer vaccine, the first real-world study in this…
We are aware that many of you are not on the Shielded Patient List and have been informed by your GP surgery that you will not be included in group 4 for the COVID vaccine. To be added to the shielded patient list by your GP you can take a copy of this ‘GP letter…
COVID-19 Vaccine for people with MPNs (updated 11th Jan 2021) Having an MPN and any MPN treatment is not a contraindication to receiving the vaccine. Patients with MPN are in group 4, or higher priority if older. For information regarding prioritisation of vaccination use this link. If you are taking an anticoagulant, e.g., warfarin, rivaroxaban,…