Alisia O – aged 60 I’m a wife and mother of two beautiful girls. I was diagnosed in 2008 with essential thrombocythaemia. Emotions of diagnosis Apart from a number of recurrent miscarriages, up until that point I had generally been fit and healthy and it was only through trying to donate blood that my high…
COVID-19 Vaccine for people with MPNs (updated 11th Jan 2021) Having an MPN and any MPN treatment is not a contraindication to receiving the vaccine. Patients with MPN are in group 4, or higher priority if older. For information regarding prioritisation of vaccination use this link. If you are taking an anticoagulant, e.g., warfarin, rivaroxaban,…
We are extremely excited to announce the launch of our newly designed MPN Voice website on December 4th, 2020. Our previous website, developed in 2014, was done so using a Content Management System (web development software package) that rather frustratingly is to be phased out in February 2021. We have embraced this challenge and taking…
The language of haematologists is complex. Knowing the lingo can help you find your way in the strange land of myeloproliferative neoplasms (MPNs). When you first learn you have a myeloproliferative neoplasm (MPN), it can be overwhelming to grapple with a new diagnosis. You might find it difficult to understand what your doctor is telling…
As patients with myeloproliferative neoplasms (MPNs), there’s one thing many of us have in common: we may feel fatigued. But there are solutions available that can give us more energy. Research shows that fatigue is one of the biggest problems we face as people with MPNs. In 2005, the Mayo Clinic in the US conducted…
Some people with myeloproliferative neoplasms (MPNs) feel just fine. If you feel strong, take advantage of this and protect your long-term health by getting active. Not everyone with an MPN feels unwell. You may feel fit and energetic and if that’s the case for you it’s great news. “A person with a low risk MPN…
A coordinated care plan between your haematologist and your obstetrician helps ensure the health of you and your unborn child. Some people are diagnosed with a myeloproliferative neoplasm (MPN) in their twenties and thirties, a time in life when you may be thinking about starting a family. The good news is that having an MPN…
One of the biggest challenges some people face when they have a myeloproliferative neoplasm (MPN) is finding someone to talk with, someone who really understands. Many of us didn’t know what an MPN was when we were first diagnosed. Often we had never met anyone who had one of these disorders. One of the challenges…
Myeloproliferative neoplasms (MPNs) are chronic, long-term illnesses, and because they continue through our lives, they can change the way we see ourselves. While many people take their illness in their stride, others, particularly those who feel unwell or are facing serious risks to their long-term health, might find that having an MPN brings up many…
Myeloproliferative neoplasms (MPNs) are rare and they’re most likely to affect adults. However, these disorders can affect people at any age. If you are under 24 years old and you have an MPN, you might not know anyone else with an MPN let alone someone your own age. Gavin Maynard-Wyatt, Lead Cancer Nurse for patients…