I am caring for someone

There’s nothing you can do to change the diagnosis, but reliable information and emotional support can make all the difference. If your loved one has been recently diagnosed with a myeloproliferative neoplasm (MPN) you might be coping with many feelings. You may feel afraid of losing your loved one and wondering what is ahead. You…

Design your own event

Your fundraising event can be small or big, as all fundraising adds up to make a huge difference for all of us with our rare blood cancers, myeloproliferative neoplasms (MPNs). If you don’t want to participate in a fundraising event organized by MPN Voice, you can still do your own thing! If you would like…

HealthUnlocked

HealthUnlocked is a social network for health. By finding others with similar health backgrounds people can take on day to day health concerns together. And because the communities are set up by leading health organisations people have access to credible support. The founders believe good health information is good for your health. HealthUnlocked has been…

Additional treatments

Several types of drugs can be given to address common problems. There are a number of different treatments used in addition to the principal drugs used to treat myeloproliferative neoplasms (MPNS). Your haematologist may prescribe additional treatments to prevent or control side effects. If you have myelofibrosis  (MF) you may be prescribed additional medications. You…

Bone marrow transplant

For some myelofibrosis (MF) patients whose disease symptoms and quality of life deteriorate, even with the current range of drug therapies and treatments available, a stem cell or bone marrow transplant (BMT) may be considered. Watch the video where Chris shares his experience of a bone marrow transplant, also known as stem cell transplant (SCT).…

Venesection (phlebotomy)

Taking blood – called venesection or phlebotomy in medical language – reduces red blood cell counts in people with polycythaemia vera (PV).  It has very few risks. If you have polycythaemia vera (PV) you have too many red blood cells. One way to reduce your red cell count that does not require any medication at…

Thalidomide

Thalidomide can be taken alone or combined with steroids to treat myelofibrosis (MF). Why take this drug? Thalidomide combined with steroids can occasionally help with anaemia, low platelet counts and sometimes enlarged spleen, and can be very effective in some patients. There is evidence to suggest that in some patients with early MF, thalidomide may…

Ruxolitinib

Ruxolitinib is a medication used to treat myeloproliferative neoplasms (MPNs). It is licensed for the treatment of patients with myelofibrosis (MF) either primary or occurring after polycythaemia vera (PV) or essential thrombocythaemia (ET). It is under investigation in clinical trials for patients with PV and ET. The drug is known by several names. It goes…

Melphalan, busulfan and P32

These drugs may help where other medications do not. Melphalan, or radioactive phosphorous (also called P32) were common therapies used in the past to treat myeloproliferative neoplasms (MPNS). Why are these drugs no longer commonly used? Melphalan, or radioactive phosphorous can cause infertility and can damage the bone marrow.  These drugs are also known to…

Interferon alpha

Interferons are protein based drugs that can be used to treat MPNs. Interferons occur naturally in our bodies and help us to fight infection. They can also be given as medications and are used to treat many types of disorders. Interferons are used to treat all three main types of myeloproliferative neoplasms (MPNs): polycythaemia vera…