As a young person living with an MPN I hope that my story will provide comfort to other young people with MPNs to know that they are not alone and there is support out there for them. MPN Voice is very close to my heart as I was diagnosed with Essential Thrombocythemia in September…
“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way of supporting the vital research required to find potential cures for her and others like her”. My name is Heidi Rose. I am 31 years old and so far I have raised more than £6,000…
“My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before, but I would definitely do it again.” My wife Annette was diagnosed with Polycythaemia Vera, more than fifteen years ago so I was keen to support the charity and the work they do to make…
Researchers at the University of Oxford are working on a project that could make huge improvements to the diagnosis of myeloproliferative neoplasms (MPNs). Using AI, the research could lead to people getting an accurate diagnosis sooner and could mean that changes in bone marrow are picked up earlier, hopefully this will mean earlier access to…
An evening of Traditional Irish Music in aid of MPN Voice – live in Dublin Friday 6th October 2023, 8.30 pm (doors open at 8 pm), in The Cobblestone Pub, 77 King Street North, Smithfield, Dublin, and streaming live online via YouTube. This amazing evening of traditional Irish music is being held specially to support…
PEN (Patient Empowerment Network) is hosting a webinar on Tue 15th August 2023 entitled ‘HCP Roundtable: Shared Decision Making in MPN Care’ Watch online at 1pm ET (10 AM PT, 12 PM CT) for a 30 minute virtual webinar. Please note these times are for the US, please check the time for your own country. This…
Walk to Support Challenge 2023 – During the week of 14th September (the eleventh MPN Awareness Day is 14th September 2023) We’re excited to announce our global challenge “Walk to Support” is back again this year it’s all about getting you, family, friends and your dog moving (you don’t have to have a dog). To…
Date: Sunday 21 April 2024 Start time: 9 am Booking fee: £50 Fundraising goal: £2,500 Challenge level: advanced Distance: 26.2 miles The London Marathon is the ultimate running event, with an electric atmosphere and a legendary route from Greenwich Park to Buckingham Palace. You’ll be passing by some of London’s most iconic landmarks, soaking up the…
Date: Sunday 7 April 2024 Time: 10 am start Challenge level: moderate Distance: 13.1 miles The event is not your average half marathon. From cultural landmarks and heritage to the city’s quirky and hidden secrets, runners get to explore the capital on a route like no other! The race starts by The Strand, finishes by…
**update 22 Nov 23** – THE VENUE HAS CHANGED Due to a refurbishment at The Carlton Hotel we will now be holding the forum in: The Scotsman Hotel, 20 North Bridge, Edinburgh, EH1 1TR Friday 8th December 2023, 10 am – 2 pm The forum is now fully booked, but you can be added to…