Thursday 9th September 10 – 11.30 am (CET) Dedicated to MPN Awareness Day, AOP Orphan will host a virtual MPN Breakfast. We warmly invite you to join this live discussion with patients, haemato-oncologists and researchers to raise awareness together! The speakers are: Mr. Thomas Bierfeld, MPN Patient Mrs. Sonja Kato, Moderator Mr. Peter Loffelhardt, MPN…
Thursday 9th September 3 pm (CET) The MPN Advocates Network is a group of MPN patient organizations dedicated to MPN patient advocacy. This webinar taking place on MPN Awareness Day will be hosted by Ruth Fein Revell, MPN Patient Advocate, with special guests: Prof Ruben Mesa, Mays Cancer Center, San Antonio, Texas and Prof Claire…
Streamed live online (via Zoom) – Saturday 18th September 2021, 9.30 am – 12.30 pm There are still places available to attend this online forum. Update to the programme and speakers!! This MPN Voice online patients’ forum is being hosted by Dr Eibhlin Conneally, St James’ Hospital, Dublin and Dr Clodagh Keohane, Mercy University Hospital,…
Streamed live online (via Zoom) – Wednesday 25th August 2021, 4 – 7.30 pm This forum is now fully booked, however, there is a waiting list in operation, please continue to register and you will be placed on the waiting list, when cancellations are received, places will be offered to those people on the waiting…
***FULLY BOOKED*** registration is now closed for this forum Streamed live online (via Zoom) – Monday 21st June 2021, 4 – 7 pm This MPN Voice ‘virtual’ patients’ forum is being hosted by Prof Tim Somervaille, The Christie NHS Foundation Trust, Manchester, Dr Rachel Brown, Manchester Royal Infirmary, and Dr Rowena Thomas-Dewing, Salford Royal NHS…
Hooray – some freedom!! Spring is here, we can get out and enjoy the fresh air with family and friends (Covid friendly of course). So, in conjunction with Just Giving and Run For Heroes, MPN Voice Fundraising is delighted to announce our next event #5kMay. Our global MPN Voice Community can do this anywhere in…
Your fundraising event can be small or big, as all fundraising adds up to make a huge difference for all of us with our rare blood cancers, myeloproliferative neoplasms (MPNs). If you don’t want to participate in a fundraising event organized by MPN Voice, you can still do your own thing! If you would like…
We are ever grateful for the various fundraising efforts of our supporters who not only raise vital funds for MPN Voice, but also awareness of MPNs. Although lots of fundraising events have been cancelled or postponed this year, you can still raise money for MPN Voice by doing a virtual challenge. Take on a sporting…
HealthUnlocked is a social network for health. By finding others with similar health backgrounds people can take on day to day health concerns together. And because the communities are set up by leading health organisations people have access to credible support. The founders believe good health information is good for your health. HealthUnlocked has been…
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis and football at county level for many years, I then turned to running and crossfit training as a means of keeping fit. I like a challenge so I entered the ballot for the London Marathon,…