My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty and a lot of tests before finally getting a diagnosis in early 2023 that I had ET. I then spent most of last year working with doctors to get my medication levels right. I consider…
As a young person living with an MPN I hope that my story will provide comfort to other young people with MPNs to know that they are not alone and there is support out there for them. MPN Voice is very close to my heart as I was diagnosed with Essential Thrombocythemia in September…
“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way of supporting the vital research required to find potential cures for her and others like her”. My name is Heidi Rose. I am 31 years old and so far I have raised more than £6,000…
“My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before, but I would definitely do it again.” My wife Annette was diagnosed with Polycythaemia Vera, more than fifteen years ago so I was keen to support the charity and the work they do to make…
Researchers at the University of Oxford are working on a project that could make huge improvements to the diagnosis of myeloproliferative neoplasms (MPNs). Using AI, the research could lead to people getting an accurate diagnosis sooner and could mean that changes in bone marrow are picked up earlier, hopefully this will mean earlier access to…
Exciting news! MPN Voice is launching a young patient network that aims to bring together and support young people with MPNs. We know that being diagnosed at an early age can bring a unique set of questions, challenges, concerns, and experiences. That’s why we’re creating a space where young people can meet and connect with…
MPN Voice is producing a recipe book designed by and for MPN patients and we need your help! Background Diet is so important in contributing to a healthy lifestyle – we all know that we are what we eat. However, emerging research is looking at the relationship between nutrition and MPNs, and the potential benefits…
Your fundraising event can be small or big, as all fundraising adds up to make a huge difference for all of us with our rare blood cancers, myeloproliferative neoplasms (MPNs). If you don’t want to participate in a fundraising event organized by MPN Voice, you can still do your own thing! If you would like…
HealthUnlocked is a social network for health. By finding others with similar health backgrounds people can take on day to day health concerns together. And because the communities are set up by leading health organisations people have access to credible support. The founders believe good health information is good for your health. HealthUnlocked has been…
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis and football at county level for many years, I then turned to running and crossfit training as a means of keeping fit. I like a challenge so I entered the ballot for the London Marathon,…