My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty and a lot of tests before finally getting a diagnosis in early 2023 that I had ET. I then spent most of last year working with doctors to get my medication levels right. I consider…
As a young person living with an MPN I hope that my story will provide comfort to other young people with MPNs to know that they are not alone and there is support out there for them. MPN Voice is very close to my heart as I was diagnosed with Essential Thrombocythemia in September…
“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way of supporting the vital research required to find potential cures for her and others like her”. My name is Heidi Rose. I am 31 years old and so far I have raised more than £6,000…
“My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before, but I would definitely do it again.” My wife Annette was diagnosed with Polycythaemia Vera, more than fifteen years ago so I was keen to support the charity and the work they do to make…
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis and football at county level for many years, I then turned to running and crossfit training as a means of keeping fit. I like a challenge so I entered the ballot for the London Marathon,…
15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28, she went to MPN Voice for support and guidance. I was amazed and humbled by the support she received from you forums, especially after attending a patient group forum in London last year.She has struggled…
15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is just about to have our first baby….. middle of April!!! So no pressure then!!! I’m either going to be running on Sunday 24th April really fast, because our baby is late and just in case……
15 March 2016 The 2015 Virgin London Marathon weekend was poignant for me, I spent most of the weekend reading the information about ET on the MPN Voice website, I had suffered two mini-strokes in quick succession at the age of 30. I was diagnosed with Essential Thrombocythaemia. I was reading up on my impending…
09 November 2015 Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is taking Interferon. Amanda suffered a TIA (mini stroke) in 2014 and as part of her keep fit campaign and to help awareness and raise funds for research decided to run the Hull 10k raising £470.…
09 November 2015 Karen, who has PV, is a frequent MPN Voice supporter and fundraiser. As part of her get fitter campaign she has been training hard since April, putting on her trainers, pounding the streets in her MPN Voice T Shirt, raising awareness and doing some serious training for the Shine Walk. Karen raised…