15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28, she went to MPN Voice for support and guidance. I was amazed and humbled by the support she received from you forums, especially after attending a patient group forum in London last year.She has struggled…
15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is just about to have our first baby….. middle of April!!! So no pressure then!!! I’m either going to be running on Sunday 24th April really fast, because our baby is late and just in case……
15 March 2016 The 2015 Virgin London Marathon weekend was poignant for me, I spent most of the weekend reading the information about ET on the MPN Voice website, I had suffered two mini-strokes in quick succession at the age of 30. I was diagnosed with Essential Thrombocythaemia. I was reading up on my impending…
09 November 2015 Amanda, 33 and a mother of three children was diagnosed with ET in 2010 and is taking Interferon. Amanda suffered a TIA (mini stroke) in 2014 and as part of her keep fit campaign and to help awareness and raise funds for research decided to run the Hull 10k raising £470.…
09 November 2015 Karen, who has PV, is a frequent MPN Voice supporter and fundraiser. As part of her get fitter campaign she has been training hard since April, putting on her trainers, pounding the streets in her MPN Voice T Shirt, raising awareness and doing some serious training for the Shine Walk. Karen raised…
09 November 2015 After many years with Polycythaemia Vera, I gradually became very ill just before Christmas 2010 and was referred to Guy’s Hospital in London for more detailed tests and monitoring after which I was given a new drug. Fortunately this has made an enormous difference to my quality of life. I am enormously…
21 June 2015 David was diagnosed with ET a few years ago and decided he wanted to get fit and needed a target and decided this would be ‘The Year in the Saddle’. His cycle challenge covered 1,234 miles and impressively he threw in a bit of swimming and running too! David has raised…
18 June 2015 Laura and Peter decided to accept our challenge and as Laura put it, ‘threw themselves off’ the Golden Jubilee Wing of King’s College Hospital London. They raised over £1,093 and Peter’s work also very kindly donated another £700.
16 June 2015 Ruby’s Auntie Rachael has essential thrombocythaemia(ET) and Ruby wanted to do something to show her support and decided to do a bike ride to raise funds for MPN Voice. Ruby and her father Peter rode the 25 mile LIDBA bike ride through the Hampshire lanes, starting and finishing at Liphook which…
04 June 2015 Gerry Burns was diagnosed with PV in 2006 and was 53 when he did the run. He writes ‘I was going to do something for Cancer Research as Loretta, my sister, was being treated for lung cancer. I am happy to say she is still with us and very much improved…