Researchers at the University of Oxford are working on a project that could make huge improvements to the diagnosis of myeloproliferative neoplasms (MPNs). Using AI, the research could lead to people getting an accurate diagnosis sooner and could mean that changes in bone marrow are picked up earlier, hopefully this will mean earlier access to…
PEN (Patient Empowerment Network) is hosting a webinar on Tue 15th August 2023 entitled ‘HCP Roundtable: Shared Decision Making in MPN Care’ Watch online at 1pm ET (10 AM PT, 12 PM CT) for a 30 minute virtual webinar. Please note these times are for the US, please check the time for your own country. This…
Exciting news! MPN Voice is launching a young patient network that aims to bring together and support young people with MPNs. We know that being diagnosed at an early age can bring a unique set of questions, challenges, concerns, and experiences. That’s why we’re creating a space where young people can meet and connect with…
MPN Voice is producing a recipe book designed by and for MPN patients and we need your help! Background Diet is so important in contributing to a healthy lifestyle – we all know that we are what we eat. However, emerging research is looking at the relationship between nutrition and MPNs, and the potential benefits…
Your fundraising event can be small or big, as all fundraising adds up to make a huge difference for all of us with our rare blood cancers, myeloproliferative neoplasms (MPNs). If you don’t want to participate in a fundraising event organized by MPN Voice, you can still do your own thing! If you would like…
HealthUnlocked is a social network for health. By finding others with similar health backgrounds people can take on day to day health concerns together. And because the communities are set up by leading health organisations people have access to credible support. The founders believe good health information is good for your health. HealthUnlocked has been…
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis and football at county level for many years, I then turned to running and crossfit training as a means of keeping fit. I like a challenge so I entered the ballot for the London Marathon,…
Led by Jon Mathias, co-chairperson for MPN Voice and Caroline Thomas an ET patient, we have been looking at ways to best represent patients affected by myeloproliferative neoplasms (MPNs) Advocacy means speaking on behalf of someone or something and in this case, we’re saying that one of MPN Voice’s roles, as our name suggests, is…
15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28, she went to MPN Voice for support and guidance. I was amazed and humbled by the support she received from you forums, especially after attending a patient group forum in London last year.She has struggled…
15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is just about to have our first baby….. middle of April!!! So no pressure then!!! I’m either going to be running on Sunday 24th April really fast, because our baby is late and just in case……