Date: Sun 13 Oct 2024 Location: through 4 of London’s leafy parks Booking fee: £25 Fundraising goal: £350 Challenge level: Moderate to hard Distance: 13.1 miles The Royal Parks Half Marathon is one of the most beautiful half marathons in the running calendar. The stunning 13.1-mile route runs through four of London’s leafy Royal Parks…
Walk across the city this Halloween, if you dare! Date: Sat 26 Oct 24 Location: The Oval Cricket Ground Distance: 10 and 25 km Join us for a hair-raising hike around some of the city’s scary streets and historic haunts. Choose your distance, with 10 km and 25 km options, gather your bravest guy’s and…
Date: Sunday 6 April 2025 Start time: TBC Challenge level: moderate Distance: 13.1 miles The event is not your average half marathon. From cultural landmarks and heritage to the city’s quirky and hidden secrets, runners get to explore the capital on a route like no other! The race starts by The Strand, finishes by Downing…
Date: Sunday 27 April 2025 Start time: 9 am Booking fee: £50 Fundraising goal: £2,500 Challenge level: advanced Distance: 26.2 miles The London Marathon is the ultimate running event, with an electric atmosphere and a legendary route from Greenwich Park to Buckingham Palace. You’ll be passing by some of London’s most iconic landmarks, soaking up the…
In Conversation with the My MPN Voice app team – Dr Patrick Harrington, Debbie Street and Mark Taylor. The team talk to Nona about the recently launched My MPN Voice app: the objectives and goals of the app and associated research study that patients will be taking part in, via the app and the wearable…
PEN (Patient Empowerment Network) is hosting an EPEP myelofibrosis webinar entitled “HCP Roundtable: Breaking Through Myelofibrosis Practice Barriers” on 26 June at 1pm ET (10 AM PT, 12 PM CT). What are the nuanced challenges and practice barriers in myelofibrosis care? How do patient socioeconomic factors impact treatment access? How can HCPs enhance patient-centric care in myelofibrosis for…
The video of the MPN Voice patients’ virtual forum, held on Thursday 16 May 2024, is now available to view. This online forum focussing on the My MPN Voice App features presentations from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Patrick Harrington, Guy’s & St Thomas’ NHS FT; ANP Claire Woodley, Guy’s…
In Conversation with Gill Thomas, who talks to Nona about being diagnosed with ET in 2004 and now has MF. Gill tells Nona about experiencing symptoms of fatigue which impacted on her life, particularly when she was working full time and how speaking to a counsellor helped her to be able to take more control…
Big News for the MPN Community! The moment you’ve been waiting for is finally here! The My MPN Voice App has officially landed! Watch the info-video to see what it looks like. For our UK friends who registered their interest, keep a close eye on your inbox. Our onboarding team will be reaching out to…
In Conversation with Mary Zazzi, who talks to Nona about being diagnosed with ET in 1983 when she was 17 years old, when her high platelet count was discovered after experiencing a DVT post knee surgery. It was very difficult for Mary to be told she had rare disease and was worried about her future…