MOMENTUM study – top line data announced in a press release

The MOMENTUM study is a global, randomized, double-blind clinical trial evaluating momelotinib (MMB) in myelofibrosis patients who are symptomatic and anaemic and previously treated with an approved JAK inhibitor.  The trial met all of its primary and secondary endpoints, achieving statistically significant benefit on symptoms, anaemia and splenic size. Professor Claire Harrison, Guy’s & St…

Communication preferences survey

MPN Voice is committed to providing health care information and support through a variety of channels. Please can you take some time to help us to understand your communication preferences for receiving information about MPNs. All answers will be anonymous and we will use the results to develop the support needed to MPN patients and…

Will you share your story on our website?

We need your help – will you share your story on our website? We are currently updating and reviewing the information on our website. The real stories shared by the MPN Community are an important section where new patients and their families can be informed and encouraged by stories of how different people are living…

MPN COVID-19 Vaccination Survey – results

We would like to thank everyone who completed the MPN COVID-19 vaccination survey in March. The survey was conducted by the teams at Guy’s & St Thomas’ Hospital to assess the various aspects regarding COVID vaccines in people with MPNs, including their opinions and experiences regarding vaccination which is of major interest to aid future…

COVID Oxford Astra Zeneca vaccine and risk of blood clots

The MPN Voice medical advisory committee wants to share with our community the following: Thrombosis associated with low platelets is an exceedingly rare event in patients receiving the Oxford-AZ COVID vaccine and causal relationship remains unclear. There are no confirmed reports of any specific platelet or thrombosis problems in MPN patients relating to the COVID…