Fundraising Team Christmas message 2023

The MPN Voice Fundraising Team would like to say a huge THANK YOU to everyone who took part in fundraising events and made donations in 2023, and to all your amazing supporters for their generosity.  There have been many inspirational fundraising events all with very moving stories behind the motivation to raise incredible funds for…

Christmas message 2023

Hello everyone It’s that time of year again for the round-up of the MPN Voice year, and once again it has been an amazing and very busy year. Forums, in-person and virtual online – the in-person forum calendar was full this year, with 7 forums in Galway, Nottingham, Inverness, Llandudno, Newcastle-upon-Tyne, Leeds and Edinburgh, all…

NICE Guidance on Ruxolitinib for the treatment of Polycythaemia Vera

We are delighted to announce that NICE (the National Institute for Health and Care Excellence) has recently released Final Guidance recommending Ruxolitinib for treating Polycythaemia Vera (PV) in adults in England who cannot tolerate Hydroxycarbamide (also called Hydroxyurea) or when the condition is resistant to it. Ruxolitinib is already approved, in similar cases, for the treatment of PV patients in Scotland and…

A very special interview with Dr Patrick Harrington regarding Covid vaccines and MPN patients

In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed a lot of research,…