A very special interview with Dr Patrick Harrington regarding Covid vaccines and MPN patients

In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed a lot of research,…

feedback for a proposed research study investigating the relationship between Ruxolitinib and non-melanoma skin cancers

Proposed research study investigating the relationship between Ruxolitinib and non-melanoma skin cancers, led by UK MPN doctors We need your help with some feedback.  A group of UK MPN doctors are planning research to investigate the relationship between Ruxolitinib and skin cancers and they would be grateful for your views on their plans. Please can…

In Conversation With … Dr Claire Andrews, Consultant Haematologist, St Vincent’s Hospital, Dublin

In Conversation With … Dr Claire Andrews, Consultant Haematologist, St Vincent’s Hospital, Dublin, who spoke to Nona about her role as haematologist in St Vincent’s, taking up the post 2 years ago.  She told Nona that there is a large cohort of MPN patients in the hospital, with many different needs.  Claire then spoke about…

funding to support research projects

Research Funding – MPN Voice has a mission to encourage research for the benefit of MPN patients, for example, support for MOSAICC and the Mithridate study. Funding from MPN Voice is now available to support either the entirety or part of a specific research project that will benefit MPN patients.  A maximum funding of £50,000…

Fiona’s Fund to support educational training for clinical staff

Fiona’s Fund – supported by a legacy from a grateful patient who had a long relationship with MPN Voice, to be used to support educational needs of clinical staff, prioritising nurses, pharmacists, psychologists and allied health professionals.  Specifically, funding will prioritise projects which can be shown to benefit MPN patient care, examples might include, but…

In Conversation With … Sarah Connolly, Candidate ANP Haematology, University Hospital Galway

In Conversation With … Sarah Connolly, Candidate ANP Haematology, University Hospital Galway.  This conversation took place at the MPN Voice Patients’ Forum in Galway, held on Sat 24 June 2023.  Sarah spoke about taking up her position in January this year as the Candidate Advanced Nurse Practitioner in the haematology department in Galway Hospital, and…