If you’re a young patient, I am sure this will be very familiar to you. Googling ‘what is an MPN?’. This might initially be in the build up to, or the aftermath of, your first haematology appointment. We’re often warned ‘don’t Google your symptoms’, but sometimes the pull of the web is just too strong…
This month I am joined by Gabor who is 30, has PV, and is my unofficial patient buddy. Gabor and I met at my first MPN Voice patient forum at the top of Guy’s hospital in 2016. Anyone who has attended a forum there will know that you get remarkable, panoramic views over the city…
Hello. My name’s Alice. I’m 26 and I have Essential Thrombocythaemia. Over the next year, I’ll be publishing monthly blog posts here on the MPN Voice website about what it’s like to be a young person with an MPN. I’ll be writing about my personal experience and journey of being diagnosed with an MPN, together…
As you will be aware the government has launched a 3rd dose of COVID vaccination for selected patients who may not have mounted an adequate response to the first two doses. Separately adults over 50 years and those in original vaccine groups 1-9 are to be offered a so-called booster dose. The type of vaccine…
In this video, Dr Abbie Wickham discusses the psychological impact of Covid-19 among the MPN community and how to resolve these stresses.
An update for MPN patients recorded on 22 May 20. Profs Claire Harrison & Adam Mead, Dr Donal McLornan & CNS Claire Woodley give an update on how COVID-19 is affecting MPN patients.
Consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley discuss the Government guidance for people with MPNs. Including questions from the online audience.
Hi I’d like to share my story. Hope it helps! After diagnosis I cried. Not because I’d been told I had a chronic blood disorder, but because I was relieved to learn I was not a hypochondriac! Up until then I visited my GP regularly to complain about feeling constantly unwell! I was told I…
On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over £25,000!
Maz talks about how a buddy really helped her when she was diagnosed with ET