The Living with MPNs Day, hosted by MPN Voice, was an all-day event held in London, for MPN patients, their family and friends to hear the latest news on MPNs; managing symptoms; trials and treatments – from leading experts in the field of MPNs, specialist haematology nurses and MPN patient speakers sharing their MPN journey. This was a hybrid event with an in-person audience and a global online audience viewing the live stream.
Programme – view a copy of the programme here
Videos of each session can be viewed on the MPN Voice YouTube channel, click on each link below to view. (please note that the breakout groups were closed groups and were not filmed or live streamed)
Session 1 – Welcome from MPN Voice, Nona Baker and Jon Mathias, Co-chairs MPN Voice view video
Session 2 – ET patient story, Maz Campbell-Drew view video
Session 3 – The latest trends in research in MPN, Prof Adam Mead, Oxford view video
Session 4– Specific focus on targeting CALR, Prof Beth Psaila, Oxford view video
Session 5– Diet and nutrition, Laura Miller, Nottingham view video
Session 6 – MOSAICC study update, Prof Lesley Anderson, Aberdeen view video
Session 7 – What are we learning from the My MPN Voice App, Dr Patrick Harrington and Debbie Street, London view video
Session 8 – Panel Q&A (part 1) view video
Session 9 – NHS data and AI, Dr Wai Keong Wong, Cambridge view video
Session 10 – A conversation about fatigue, ANP Claire Woodley, Rose Marshall and Nicola Peat, The Fatigue Service, London view video
Session 11 – A patient story, Tobe Aleksander view video
Session 12 – Panel Q&A (part 2) view video
Session 13 – Panel discussion with all clinicians – a moderated discussion, led by Prof Claire Harrison, London view video
Session 14 – Having an MPN – what does the future look like? Prof Ruben Mesa, North Carolina, USA view video
MPN Voice cannot be held responsible for any content on YouTube that has not been uploaded by MPN Voice which may cause offence or distress and may contain inappropriate content, any such content should be reported to YouTube.