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MPN Voice
mpnvoice.org.uk
About Us
Our Mission
News
Who is who at MPN Voice – meet the teams
Videos
MPN Voice YouTube videos
Living with MPNs Day Saturday 18th November 2023 in London
All Other Videos
Newsletters
How your money helps
Epidemiology Study
Young People and MPNs Blog
MPN Voice Vlogcasts – In Conversation With …..
About MPNs
About MPNs
Diagnosed with MPN?
What do blood counts mean?
What are MPNs?
What causes MPNs?
Essential thrombocythaemia (ET)
Myelofibrosis (MF)
Polycythaemia vera
A-Z of terminology
Treatments
General Info
Treatment leaflets
Anagrelide
Integrative treatment
Aspirin
Cytarabine
Hydroxycarbamide
Inrebic
Interferon alpha
Melphalan, busulfan and P32
Ruxolitinib
Thalidomide
Venesection (phlebotomy)
Bone marrow transplant
Additional treatments
Trials and Research
Trials and Research
Going on a Trial
Current UK MPN trials
Guy’s Hospital, London, MPN Clinical Trials Portfolio
MPN Voice supported trials
Mosaicc
Vorinostat Phase II Study Results
CMML (Chronic Myelomonocytic Leukaemia) MONOCLE Study
For Health care professionals
Living With MPNs
Real Stories
I Am…
Treatment decisions
Talking with your doctor
Everyday Challenges
Everyday Challenges
Contraceptives and HRT
Deep Vein Thrombosis
Fighting fatigue
Renewing Intimacy
Coping with side effects
If you need surgery
Itchy skin
Your state of mind
Your state of mind
What you may be feeling
Looking well but feeling awful
Communicating feelings
Coping long-term
Blood Clots
After a blood clot
After a serious clot
End-of-life
Hospice care
Reducing pain and symptoms – palliative care
Ways to feel better
Ways to feel better
Complementary therapies
Reflexology and massage therapy
Relaxation podcasts for people with MPNs
Staying active
Eating well
Keeping track of symptoms
Reducing stress
Know the warning signs
Staying well
Pregnancy
MPNs in pregnancy
Planning before pregnancy
During pregnancy
Miscarriage
Practical advice
Practical advice
Cost of medications – exemption certificate
Employment rights
Travel information
Planning for travel
MPN Alert Cards
Living abroad
Get Involved
How To Get Involved
Events
Patients forums
Buddy Programme
About the Buddy Programme
Join the programme
Donate
Fundraising
Fundraise
Design your own event
Upcoming fundraising events
Fundraising Heroes
Past fundraisers
Volunteer
Advocacy
Advocacy
HealthUnlocked
My MPN Voice App
Learn more about MY MPN VOICE APP
Overview of the My MPN Voice App – with Study and without Study
Next Steps – Stages, Sign Up & Support
FAQs – GSTT Study App and Wearables
Contact
Contact Us
Submit a story
Join our mailing list
COVID-19
Autumn 2023 COVID booster campaign confirmed
Fast access to COVID medicines for people with blood cancer
4th dose COVID vaccination for people with MPNs
COVID-19 Vaccine for people with MPNs
Coronavirus (COVID-19) Advice and Information
COVID-19 and Day-to-Day Life: making decisions about your risk of exposure
Emotional and well-being advice
Webinar Videos
Podcasts- Relaxation podcasts for people with (MPNs)
Donation Appeal
MPN Alert Cards
Search:
About Us
Our Mission
News
Who is who at MPN Voice – meet the teams
Videos
MPN Voice YouTube videos
Living with MPNs Day Saturday 18th November 2023 in London
All Other Videos
Newsletters
How your money helps
Epidemiology Study
Young People and MPNs Blog
MPN Voice Vlogcasts – In Conversation With …..
About MPNs
About MPNs
Diagnosed with MPN?
What do blood counts mean?
What are MPNs?
What causes MPNs?
Essential thrombocythaemia (ET)
Myelofibrosis (MF)
Polycythaemia vera
A-Z of terminology
Treatments
General Info
Treatment leaflets
Anagrelide
Integrative treatment
Aspirin
Cytarabine
Hydroxycarbamide
Inrebic
Interferon alpha
Melphalan, busulfan and P32
Ruxolitinib
Thalidomide
Venesection (phlebotomy)
Bone marrow transplant
Additional treatments
Trials and Research
Trials and Research
Going on a Trial
Current UK MPN trials
Guy’s Hospital, London, MPN Clinical Trials Portfolio
MPN Voice supported trials
Mosaicc
Vorinostat Phase II Study Results
CMML (Chronic Myelomonocytic Leukaemia) MONOCLE Study
For Health care professionals
Living With MPNs
Real Stories
I Am…
Treatment decisions
Talking with your doctor
Everyday Challenges
Everyday Challenges
Contraceptives and HRT
Deep Vein Thrombosis
Fighting fatigue
Renewing Intimacy
Coping with side effects
If you need surgery
Itchy skin
Your state of mind
Your state of mind
What you may be feeling
Looking well but feeling awful
Communicating feelings
Coping long-term
Blood Clots
After a blood clot
After a serious clot
End-of-life
Hospice care
Reducing pain and symptoms – palliative care
Ways to feel better
Ways to feel better
Complementary therapies
Reflexology and massage therapy
Relaxation podcasts for people with MPNs
Staying active
Eating well
Keeping track of symptoms
Reducing stress
Know the warning signs
Staying well
Pregnancy
MPNs in pregnancy
Planning before pregnancy
During pregnancy
Miscarriage
Practical advice
Practical advice
Cost of medications – exemption certificate
Employment rights
Travel information
Planning for travel
MPN Alert Cards
Living abroad
Get Involved
How To Get Involved
Events
Patients forums
Buddy Programme
About the Buddy Programme
Join the programme
Donate
Fundraising
Fundraise
Design your own event
Upcoming fundraising events
Fundraising Heroes
Past fundraisers
Volunteer
Advocacy
Advocacy
HealthUnlocked
My MPN Voice App
Learn more about MY MPN VOICE APP
Overview of the My MPN Voice App – with Study and without Study
Next Steps – Stages, Sign Up & Support
FAQs – GSTT Study App and Wearables
Contact
Contact Us
Submit a story
Join our mailing list
COVID-19
Autumn 2023 COVID booster campaign confirmed
Fast access to COVID medicines for people with blood cancer
4th dose COVID vaccination for people with MPNs
COVID-19 Vaccine for people with MPNs
Coronavirus (COVID-19) Advice and Information
COVID-19 and Day-to-Day Life: making decisions about your risk of exposure
Emotional and well-being advice
Webinar Videos
Podcasts- Relaxation podcasts for people with (MPNs)
Donation Appeal
MPN Alert Cards
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