Sitemap

• Home
• About us
  • Our Mission
  • Blog
    • Detail
  • News
  • Videos
  • Newsletters
  • How your money helps
  • Epidemiology study
• About MPNs
  • Questions about MPNs
    • What do blood counts mean?
    • What are MPNs?
    • What causes MPNs?
    • Essential Thrombocythaemia
    • Myelofibrosis
    • Polycythaemia Vera
    • A-Z of terminology
  • Treatments
    • Treatment leaflets
    • Anagrelide
    • Integrative treatment
    • Aspirin
    • Cytarabine
    • Hydroxycarbamide
    • Interferon alpha
    • Melphalan, Busulfan and P32
    • Ruxolitinib
    • Thalidomide
    • Venesection (Phlebotomy)
    • Bone marrow transplant
    • Additional treatments
  • Trials & research
    • Going on a trial
    • Current UK MPN Trials
    • Guy's Hospital MPN Clinical Trials Portfolio
    • MPN voice supported trials
    • Mosaicc
    • Vorinostat Phase II Study results
    • CMML (Chronic Myelomonocytic Leukaemia) MONOCLE Study
  • For health care professionals
• Living with MPNs
  • Real stories
  • I am...
  • Treatment decisions
  • Talking to your doctor
  • Everyday challenges
    • Contraceptives and HRT
    • Preventing Deep Vein Thrombosis
    • Coping with fatigue
    • Renewing intimacy
    • Coping with side effects
    • If you need surgery
    • Itchy skin
  • Your state of mind
    • What you may be feeling
    • Looking well but feeling awful
    • Communicating feelings
    • Coping long-term
  • After a blood clot
    • After a serious clot
    • End-of-life
    • Hospice care
    • Reducing pain and symptoms
  • Ways to feel better
    • Complementary therapies
    • Reflexology & massage
    • Staying active
    • Eating well
    • Keeping track of symptoms
    • Reducing stress
    • Know the warning signs
    • Staying well
  • MPNs in pregnancy
    • Planning before pregnancy
    • During pregnancy
    • Miscarriage
  • Practical advice
    • Cost of medication
    • Employment rights
    • Travel information
    • Planning for travel
    • MPN ID cards
    • Living abroad
• Get Involved
  • Get Involved
  • Events
  • Patients' forums
    • Living with MPNs Day 18th November 2017
    • Patients’ Forum Bothwell, South Lanarkshire, 15th August 2017
    • Patients’ Forum Inverness 8th September 2017
    • Patients’ Forum Edinburgh 15th September 2017
    • Patients’ Forum Chester 29th September 2017
    • Patients’ Forum Birmingham 6th October 2017
    • Patients’ Forum Newcastle-upon-Tyne 13th October 2017
    • Video of the Patients’ Forum held in London 24th July 2015
    • Presentations from the Living with MPNS day 2013
    • Presentations from the Living with MPNs day 2015
  • Buddy programme
    • Join the programme
  • Donate
  • Fundraise
    • Design your own event
    • Fundraising heroes
    • Past fundraisers
  • Volunteer
  • Advocacy
    • Health unlocked
• Contact us
  • Contact Us
  • Join our mailing list
  • Submit a story