Would you like to join our team of volunteers? Do you have experience of hosting/facilitating webinars, preferably using the Zoom platform? If so, we would love to hear from you. We are looking for someone to assist us in delivering our webinars/online events we hold throughout the year, which inform and support the global MPN…
MPN Voice URGENTLY needs your help and feedback to support an application to NICE (National Institute for Health and Care Excellence) for the prescribing of Momelotinib to Myelofibrosis (MF) patients living in England & Wales. But we want to hear from you if you have MF regardless of where you live or whether you have…
Recently the Scottish Medicines Consortium (SMC) completed their re-appraisal of ropeginterferon alfa-2b (Besremi) for the treatment of Polycythaemia Vera (PV). MPN Voice contributed to the process with written submissions, including very valuable testimony from PV patients who are being treated with Besremi, and participation in the SMC Committee meeting to discuss the appraisal of this…
In Conversation With … Annette Matthews, who talks to Nona about her MPN journey, from ET to MF to having a stem cell transplant (SCT) in 2017 and life beyond. Annette tells Nona that once she was told about her transformation she went on a trial for a new drug, which initially did help but…
Blood Cancer UK (BCUK) is looking at how to transform support services for people with different types of blood cancer. Evidence shows that not enough patients are aware of the support they could get when living with blood cancer, including MPNs. This project by Blood Cancer UK will design a brand new support service for…