Get the balance right. Combine the best of conventional medication with complementary therapies to find a plan that works for you. Many people with myeloproliferative neoplasms (MPNs) are frustrated with the lack of choice and potential side effects associated with conventional treatments. Others feel concerned about the long-term risks posed by medications. Beyond conventional treatment…
When you were first diagnosed your haematologist may have told you the disheartening news that “there is no cure.” It’s true that none of the current medications available can eradicate your myeloproliferative neoplasm (MPN) but new research is pointing the way toward better treatments and we hope one day a real cure for patients with…
Myeloproliferative neoplasms (MPNs) are usually diagnosed in older patients, but people who are young enough to conceive need to consider their contraceptive choices carefully, whilst women approaching menopause and offered hormone replacement therapy (HRT) also need to be informed of the potential added risks of HRT. Contraceptives – considerations/risks As with any decision concerning contraception…
Epidemiology There is little information about what causes myeloproliferative neoplasms (MPNs). Patients often ask, “why do I have this disease?”, and for the majority there is no obvious reason. The MOSAICC study (MyelOproliferative neoplasmS: An In-depth Case-Control) is a UK-wide study that aims to identify what causes myeloproliferative neoplasms (MPNs) and the best way to…
Many people with MPNs wonder what causes these blood cancers. Some researchers believe that viral infections, exposure to toxins, exposure to radiation or something else may cause myeloproliferative neoplasms by causing a change in the genetic code of the bone marrow cells. Unfortunately current research still does not offer any proof as to what causes…
You may think that MPN research is primarily focused on investigating new drugs for better blood control in essential thrombocythaemia (ET), myelofibrosis (MF) or polycythaemia vera (PV) and ones that offer patients a longer and better quality of life, indeed eventually hopefully a cure. However there are also a number of projects researching why patients…
MPNs are rare blood cancers that affect how blood cells are produced in our bodies. Our bodies normally produce billions of blood cells every day. This process occurs inside our bones, in the bone marrow. The bone marrow contains stem cells which grow and mature into all the blood cells that our bodies need: Red…
It’s not uncommon to feel bewildered when you first learn you have essential thrombocythaemia (ET), polycythaemia vera (PV) or myelofibrosis (MF). The best way to fight back is to learn more about these disorders, understand the treatment options available to you and discover ways to feel your best. Newly diagnosed FAQs What are these blood…
This MPN Voice patients’ forum is hosted by the Guy’s team and will feature updates on both COVID and MPN research, as well as tips as we move forward. We have colleagues from Scotland, Ireland and Wales joining us to reflect regional differences across the UK. You are required to register for this online forum.…
Jonathan and Pippa have made it, they have arrived in Plymouth aboard their yacht Sheevra, they have successfully completed the Rolex Fastnet Race 2019. Well done both of you and many congratulations.