Day 4 Tue 6 Aug 19 at 07:30 hrs update from Jonathan and Pippa Ireland in sight. Long long best across rough Celtic sea. Hope to round Fastnet by midday. Track the progress of Sheevra GBR2421 as they round the famous Fastnet Rock and lighthouse. Fastnet Rock, or simply Fastnet is a small islet in the Atlantic Ocean…
Many of you will know Dr Jonathan Wallis who has been a Consultant Haematologist at the Freeman Hospital, Newcastle-upon-Tyne for many years. He has also been a member of the MPN Voice Steering Committee since MPN Voice was first formed as a charity in 2003. Jonathan has recently retired from both roles and we would…
Professor Ruben Mesa, MD, Dr Robyn Scherber MD, and Dr Angela Fleischman MD, of the Mayo Clinic in Arizona invite you to participate in their survey, the NUTRIENT Trial. This survey is open to MPN patients worldwide. Greetings to our myeloproliferative neoplasm (MPN) patients and dear friends! We would like to tell you a little…
Although there are currently no medications that can completely cure an MPN, there are many treatment options available to you. The kind of medication that you need depends on which MPN you have, your general health and your personal situation. Some people with “low risk” MPNs may only need minimal medication, while others will need…
17 March 2016 “Hello, my name is Helen Bass and I live in Hertford with my partner. Having played tennis and football at county level for many years, I then turned to running and crossfit training as a means of keeping fit. I like a challenge so I entered the ballot for the London Marathon,…
15 March 2016 “After my fiancé Lauren was diagnosed with Essential Thrombocythaemia in January 2014 at the age of 28, she went to MPN Voice for support and guidance. I was amazed and humbled by the support she received from you forums, especially after attending a patient group forum in London last year.She has struggled…
15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is just about to have our first baby….. middle of April!!! So no pressure then!!! I’m either going to be running on Sunday 24th April really fast, because our baby is late and just in case……
15 March 2016 The 2015 Virgin London Marathon weekend was poignant for me, I spent most of the weekend reading the information about ET on the MPN Voice website, I had suffered two mini-strokes in quick succession at the age of 30. I was diagnosed with Essential Thrombocythaemia. I was reading up on my impending…
I was diagnosed with ET in August 2000, aged 30. My only symptom at that time was priapism; (wikipedia.org/wiki/Priapism) originally lasting an hour or so and occurring three months apart but gradually developing into 2 or 3 times a week lasting up to 7 hours ! At that time I was being treated by a…
My name is Annette and I am 62 year old. Fourteen years ago I was feeling ever so tired so my GP decided to have blood tests done for this and the results kept coming back with a rather high platelet count. ‘Don’t worry’ he said. But three tests later I was diagnosed with a…