Lisa H

Lisa H aged 55 In 1994 I visited my GP as I was very lethargic and experiencing strange transient flushing episodes even after drinking just a glass of wine.  My platelet count was 1.5 million and after numerous tests, I was eventually diagnosed with ET aged 27.   My haematologist prescribed aspirin plus Hydroxycarbamide and…

Kimberley R

Kimberley R age 37  In 2010, at the age 26, following the birth of my son I suffered a major deep vein thrombosis  (DVT) and multiple pulmonary embolisms – clots in my lungs. I had to stay in hospital for several weeks, during which time I suffered a further two DVTs in my right leg.…

Katy B

Katy B, aged 43  Taking charge. When I was first diagnosed, I had been feeling run down for a long time. I felt constantly tired, and initially I was told I had viral arthritis and depression, but eventually was diagnosed with an iron deficiency, but with too many red blood cells. When I was diagnosed…