Christmas message 2022

Hello everyone It’s that time of year again for the round-up of the MPN Voice year, and once again it has been an amazing year, we started off the year with some uncertainty and trepidation about COVID and end it on a much more positive note. With the easing of the COVID restrictions life was…

MPN Voice Recipe Book

MPN Voice provides support to patients and their families across the world who have been diagnosed with rare blood cancers called Myeloproliferative Neoplasms. The chronic nature of these diseases mean that it is very important for those affected to maintain a healthy lifestyle and look after their general wellbeing. Nutrition plays a key role and…

Fundraising Team Christmas message 2022

The MPN Voice Fundraising Team would like to say a huge THANK YOU to everyone who took part in fundraising events and made donations in 2022, and to all your amazing supporters for their generosity. We were delighted that 2022 saw the return to some amazing fundraising events, as we, with caution, started to return…

VivL

VivL aged 69 Despite months of severe headaches which I went to my GP about, nothing was done until I had a transient ischaemic attack accompanied with numbness and tingling  in my right arm and face.   I was 39, very fit, played squash 2 or 3 times a week, swam every morning and walked the…

Uschi K-R

Uschi K-R aged 69 I was born in Germany but have been living in the UK for the last 45 years, where I raised my family and worked as a teacher of Modern Foreign Languages. In 2013, after a routine blood test with my GP, I was told that I had a slightly elevated haematocrit…

Suzie W

Suzie W, 46 years old. I was diagnosed with ET in 2012 while serving in the RAF.  Although my platelets remain at around 1200, I am lucky to be classed as low risk, and I only really suffer with fatigue and itchy ‘burny’ skin. I managed to stay healthy and keep myself from being medically…