video of the MPN Voice patients’ ‘virtual’ forum, London, Wed 7 Sep 2022

This online forum focussing on ET – featured talks from: Dr Anna Godfrey, Cambridge University Hospitals; Prof Mary Frances McMullin, Queen’s University Belfast, Dr Joanne Ewing, University Hospitals Birmingham, Prof Claire Harrison, Guy’s & St Thomas’ Hospital and Faye McGillian, patient speaker. Programme Welcome from Nona Baker, co-chair MPN Voice, and Prof Claire Harrison, GSTT…

video of the MPN Voice patients’ virtual forum, London, 11 July 2022

This online forum – Symptom Management – featured talks from: Claire Woodley, Advanced Nurse Practitioner, Guy’s & St Thomas’ Hospital (GSTT) and Lauren Urwin, Specialist Occupational Therapist, GSTT, and Rachael George, Physiotherapist, GSTT. Programme Welcome from Nona Baker, co-chair MPN Voice, and Prof Claire Harrison, GSTT Symptom overview and tracking – ANP Claire Woodley Focus…

Fatigue, Exercise and Wellbeing

Fatigue is a common symptom of MPNs and can be a significant challenge for patients. In a leaflet entitled ‘Fighting Fatigue’, MPN Voice lists the many ways in which fatigue can be experienced, from a lack of energy and inability to do ‘everyday’ tasks through to difficulties in concentrating, thinking, and making decisions. Disruption to…

Q&A with Dr Sophia Kaimaklioti

For some people, MPNs have a minimal impact on their everyday lives.  For others, MPNs can cause daily and debilitating symptoms that are difficult to manage and cope with.  For the latter, living with a chronic disease throws up numerous challenges and obstacles that can make life, work, and social activities more of a struggle.…