In this vlogcast, Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London, speaks with Nona about considerations for MPN patients when travelling away from their home city and how to be prepared and cope with change if events cause disruption to travel. Overall, the discussion emphasizes resilience, practical planning and mental well-being to help MPN…
In this vlogcast, Dr Kathleen McHugh shares her talk/presentation – Psychological adjustment after diagnosis of MPN; coping with uncertainty. The talk focuses on coping with a serious illness diagnosis, particularly for newly diagnosed patients and their families. Dr McHugh uses analogies and practical advice to help patients understand and manage their emotional responses to…
The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the development and progress of an My MPN Voice app designed to help patients monitor their myeloproliferative neoplasm (MPN). The app, launched in April 2024, has over 300 users who track their symptoms and biometric data using a Withings smartwatch.…
Are you aged 18-39 and living with a MPN? Join our study to share your experiences and help shape the future of support for young patients. We would be delighted if you would consider taking part in a study focusing specifically on young people’s experiences of living with a diagnosis of MPN. Very few studies…
We are delighted to announce that the recordings of the Young People and Adolescents with MPNs virtual forum are now available to view. The forum was a collaborative effort with our colleagues in Vivre avec une NMP, using AI-generated avatars for simultaneous transmission of the clinicians’ presentations in French, Spanish and English, alongside other sessions…
The video of the MPN Voice patients’ virtual forum – Post ASH 2024 update – held on 6 Jan 2025, is now available to view. The American Society of Hematology (ASH) conference serves as a pivotal platform for haematology professionals, attracting over 30,000 delegates and showcasing nearly 8,000 unique scientific abstracts, making it the largest…