We are delighted to announce that NICE (the National Institute for Health and Care Excellence) has recently released guidance recommending momelotinib as an option within the NHS for treating myelofibrosis-related splenomegaly (enlarged spleen) or symptoms in adults with intermediate-2 or high-risk myelofibrosis (MF) with moderate to severe anaemia, who have not had a JAK inhibitor…
MPN Voice URGENTLY needs your help and feedback to support an application to NICE (National Institute for Health and Care Excellence) for the prescribing of Momelotinib to Myelofibrosis (MF) patients living in England & Wales. But we want to hear from you if you have MF regardless of where you live or whether you have…
We have some important and very welcome news to share with you about a new drug for myelofibrosis patients. After a long and complicated appraisal process, the Scottish Medicines Association (SMC) has decided that fedratinib is to be made available to NHS Scotland. The drug, to be distributed under the name Inrebic, is the first…
We have some important and very welcome news to share with you about a new drug for myelofibrosis patients. After a long and complicated appraisal process, the National Institute for Clinical Excellence (NICE) has decided that fedratinib is to be made available to the NHS. The drug, to be distributed under the name Inrebic, is…
In this video, Albert talks about how he was diagnosed with myelofibrosis and how it’s affected his life. Albert took a new drug which at the time of filming was under trial to treat myelofibrosis. This drug is a JAK2 inhibitor called Ruxolitinib. Albert was very pleased with how he responded on the new medication.…
We are happy to share with everyone a very positive outcome from the NICE review of ruxolitinib. Particular thanks to everyone who responded to information requests, our patient attendees, patient advocacy teams and clinical experts. What has NICE said? Ruxolitinib (Jakavi) is recommended as a possible treatment for treating disease-related splenomegaly or symptoms in adults…
Dr Ruben Mesa and Dr Veena Fauble, haematologists at the Mayo Clinic discuss bone marrow transplant (BMT) as a treatment option for patients diagnosed with Myelofibrosis.
Leading MPN specialists give an overview of the symptoms patients with MF may suffer from.
Myelofibrosis, A Patient’s Story
