In this vlogcast, Neil shares his personal journey living with a MPN, beginning with his diagnosis of ET in 1994 and progressing to MF in 2023. He speaks candidly about the emotional and physical toll of his MPN, his experiences with treatment, and the ongoing decision-making process around a potential stem cell transplant. Their candid conversation offers encouragement, perspective and practical insights for anyone facing a similar path.
Key messages and reflections
- Everyone’s journey is different – find your own path
- Stay informed, reach out for support and take things step by step
- There is hope, treatments are improving, research is advancing, and support systems like MPN Voice and peer buddies are invaluable
We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk. If you have any suggestions for future conversations please let us know.
We would like to thank Neil for taking part in this conversation with Nona.
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