Janet W

I was flabbergasted when, in December 2013, I was diagnosed with essential thrombocythaemia. I had thought that I was perfectly healthy – in fact I had visited my doctor for the first time in four years with symptoms totally unrelated to essential thrombocythaemia. The doctor treated me and also decided that, as I was in…

Sharon L

Twelve years ago if you had asked me what E.T stood for I probably, like many others would have replied “A funny alien on a bicycle!” Like so many sufferers I had been unwell for a while, even as a nursing sister I did not recognise my symptoms. Endless night sweats were an early Menopause,…

David L

I was first diagnosed with polycythemia vera when I was 46. I am now 74.The discovery of the disease was quite by accident, although I had not been feeling very well. I was due to have a minor operation and a blood test was taken. It was found that my blood was quite thick and…

Brenda B

2011 was nearly at an end and my thoughts were turning to Christmas shopping. I was considering just sending money or vouchers as the thought of Christmas shopping filled me with horror for once. I had been feeling unwell for some time and was in the midst of visiting and re-visiting my GP, to have…