15 March 2016 “Hello, my name is James and I live in Winchester with my beautiful wife Sarah, who is just about to have our first baby….. middle of April!!! So no pressure then!!! I’m either going to be running on Sunday 24th April really fast, because our baby is late and just in case……
Chris shares his experience of a BMT also known as SCT (stem cell transplant).
Chris talks about being a buddy and giving support to others.
John took part in the 2015 Virgin London Marathon in aid of MPN Voice
Alisia talks about her experience of Interferon and injecting
Dick M, age 77 At the age of 69 I appeared to be very fit and active, cycling, hill and dog walking and managing a half-acre garden. However, one morning I woke up with severe vertigo, had difficulty standing and was vomiting at the least provocation. A visit to my GP suggested it was an…
I was diagnosed with ET in August 2000, aged 30. My only symptom at that time was priapism; (wikipedia.org/wiki/Priapism) originally lasting an hour or so and occurring three months apart but gradually developing into 2 or 3 times a week lasting up to 7 hours ! At that time I was being treated by a…
My name is Jeffrey and I was diagnosed with Primary Polycythaemia several years ago. (I can’t actually remember how many) having been called back to my doctor following blood tests for another completely separate problem. I remember the consultation well, “ Jeffrey you have elevated red blood cells and I need to send you to…
In June 2011 the haematology consultant at a London hospital suspected a myeloproliferative disorder because my platelet count had shot up from its normal range to 937 and he asked for a JAK2 screening. This was carried out later that month. On reviewing the test results in July, the JAK2 test was negative but there…
Jennie Barnes aged 25 has lived with essential thrombocythaemia (ET) since she was diagnosed at the age of 13. In November 2013 at a routine consultation she was told that this had transformed into leukaemia. In the weeks that followed Jennie wrote an honest and moving blog about the ups and downs accompanying that diagnosis…