Epidemiology There is little information about what causes myeloproliferative neoplasms (MPNs). Patients often ask, “why do I have this disease?”, and for the majority there is no obvious reason. The MOSAICC study (MyelOproliferative neoplasmS: An In-depth Case-Control) is a UK-wide study that aims to identify what causes myeloproliferative neoplasms (MPNs) and the best way to…
Many people with MPNs wonder what causes these blood cancers. Some researchers believe that viral infections, exposure to toxins, exposure to radiation or something else may cause myeloproliferative neoplasms by causing a change in the genetic code of the bone marrow cells. Unfortunately current research still does not offer any proof as to what causes…
You may think that MPN research is primarily focused on investigating new drugs for better blood control in essential thrombocythaemia (ET), myelofibrosis (MF) or polycythaemia vera (PV) and ones that offer patients a longer and better quality of life, indeed eventually hopefully a cure. However there are also a number of projects researching why patients…
MPNs are rare blood cancers that affect how blood cells are produced in our bodies. Our bodies normally produce billions of blood cells every day. This process occurs inside our bones, in the bone marrow. The bone marrow contains stem cells which grow and mature into all the blood cells that our bodies need: Red…
It’s not uncommon to feel bewildered when you first learn you have essential thrombocythaemia (ET), polycythaemia vera (PV) or myelofibrosis (MF). The best way to fight back is to learn more about these disorders, understand the treatment options available to you and discover ways to feel your best. Newly diagnosed FAQs What are these blood…
In this video, Dr Abbie Wickham discusses the psychological impact of Covid-19 among the MPN community and how to resolve these stresses.
This MPN Voice patients’ forum is hosted by the Guy’s team and will feature updates on both COVID and MPN research, as well as tips as we move forward. We have colleagues from Scotland, Ireland and Wales joining us to reflect regional differences across the UK. You are required to register for this online forum.…
An update for MPN patients recorded on 22 May 20. Profs Claire Harrison & Adam Mead, Dr Donal McLornan & CNS Claire Woodley give an update on how COVID-19 is affecting MPN patients.
Consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley discuss the Government guidance for people with MPNs. Including questions from the online audience.
Due to the current situation regarding Coronavirus (COVID-19) we have decided to postpone the forums in Chippenham, Oxford and Galway, we hope to rearrange them later this year. At the present time the forum in Chester on Fri 25th September is still going ahead.