Videos from the Living with MPNs Day 15 Nov 2025
The videos of all sessions recorded at the MPN Voice Living with MPNs Day, held on Saturday 15 November 2025 in London, are now available to view on the MPN Voice YouTube channel.
Fundraising Team Christmas Message 2025
As we approach the festive season, the MPN Voice Fundraising Team would like to extend our heartfelt gratitude and warmest Christmas wishes to all our incredible fundraisers, supporters, and community members. Reflecting on 2025 This year has been extraordinary — a true testament to compassion, determination, and collective spirit. Your efforts have not only raised…
Celebrating the year gone by & wishing you a joyous holiday season
Well here we are, nearly at the end of another very busy and successful year for MPN Voice. We have achieved such a lot! Forums – the in-person and virtual online forums continue to be a success. It has been a pleasure to see familiar faces and meet so many new MPN patients and their…
In conversation with…Prof Claire Harrison updates from ASH 2025 and review of MPN Voice activities throughout 2025
A vlogcast with Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London and Nona Baker, Co-Chair MPN Voice. This vlogcast highlights key developments in the MPN (Myeloproliferative Neoplasms) field, shared by Professor Claire Harrison, focusing on the American Society of Hematology (ASH) conference and MPN Voice’s 2025 achievements. Key points include: ASH Conference Updates: Advances…
In Conversation with… Tobe Aleksander, update on participating in the Mithridate Study
In Conversation with Tobe Aleksander, who updates Nona, one year on from their first conversation, about her participation in the Mithridate Study. This is part 2 of a series of 3 conversations that Tobe and Nona will have about Tobe’s experiences on the study – part 1 enrolling and starting the study; part 2 mid-way…
Survey on the future of MPN Voice
What matters most to you… and what might we be missing? At MPN Voice, we’re taking a fresh look at how we support people living with myeloproliferative neoplasms (MPNs) — and we need your insight to guide us. Whether you’ve leaned on our resources, joined an event, or simply followed along quietly, your experience matters.…
In Conversation with… Dr Jack Waldman, Clinical Psychologist, Maggie’s Highlands, Inverness
In this vlogcast, Dr Jack Waldman shares his talk/presentation – Psychological Impact of MPNs – which he presented at the Patients’ Forum held in Inverness on Wednesday 3 September 2025. In this talk, Dr Waldman discusses the psychological impacts of living with myeloproliferative neoplasms (MPN). He covers common emotions people experience after diagnosis, such as…
Interferon patient survey
Dear MPN Voice community We are inviting people living with Polycythaemia Vera (PV), Essential Thrombocythaemia (ET), or Myelofibrosis (MF) who have received treatment with interferons (Pegasys or BESREMi) to take part in a short, anonymous survey. This important study aims to gather patient experiences during the recent international interferon shortages. The findings will help inform…
Vlogcast re: Pegylated Interferon Alpha – Supply & Commissioning Update
Pegylated Interferon Alpha – Supply & Commissioning Update We are very pleased to let you know that the recent shortage of Pegasys interferon has now been resolved, and hospitals are beginning to receive normal supplies again. While Pegasys was in short supply, some people were prescribed a different interferon called Besremi to make sure treatment…
NIHR’s Be Part of Research registry
NIHR’s Be Part of Research registry We would like to share this blog with you, from the NIHR Chief Executive Officer and DHSC Chief Scientific Adviser Professor Lucy Chappell, who reflects on the vital role of participants in health and care research and how the NIHR’s Be Part of Research registry will help transform the…