MPN Voice is delighted to confirm that we will again be running our flagship “Walk to Support” event in September 2025 which also coincides with Blood Cancer Awareness Month and MPN Awareness Day which is 11 September 2025. You can walk at any time to suit during this month! During this very special month we…
In this vlogcast, Neil shares his personal journey living with a MPN, beginning with his diagnosis of ET in 1994 and progressing to MF in 2023. He speaks candidly about the emotional and physical toll of his MPN, his experiences with treatment, and the ongoing decision-making process around a potential stem cell transplant. Their candid…
REGISTRATION NOW OPEN! Wednesday 3 September 2025, 10.30 am – 4 pm (arrival/registration from 10.30 – 11 am with complimentary refreshments) Venue UHI House, Old Perth Road, Inverness, IV2 3JH. (located on the Raigmore Hospital campus) THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum is an opportunity to meet other people with MPNs, to…
REGISTRATION NOW OPEN! Friday 19 September 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue Crowne Plaza Hotel Chester, Trinity Street, Chester, CH1 2BD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum, with presentations from the haematology teams from The Countess of Chester Hospital, The Clatterbridge Cancer…
REGISTRATION NOW OPEN! Friday 3 October 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue The Royal Station Hotel, Neville Street, Newcastle-upon-Tyne, NE1 5DH THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum is an opportunity to meet other people with MPNs, to share knowledge and to hear…
REGISTRATION NOW OPEN! Friday 7 November 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue Victoria Hall, Norfolk Street, Sheffield, S1 2JB THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum, with presentations from the haematology teams from Sheffield Hospital, Rotherham Hospital and Leeds Hospital, is an opportunity…
MHRA approves pharmaand GmbH’s Pegasys® (peginterferon alfa-2a) as a treatment for eligible patients with the myeloproliferative neoplasms (MPNs) blood cancers polycythaemia vera (PV) and essential thrombocythaemia (ET) First MHRA approval of an interferon alfa as a monotherapy treatment for adults with essential thrombocythaemia (ET) First MHRA approval of an interferon alfa as a monotherapy treatment…
THIS FORUM IS NOW FULLY BOOKED. YOU CAN ADD YOUR DETAILS TO THE WAITING LIST, IF THERE ARE ANY CANCELLATIONS YOU WILL BE OFFERED A PLACE. TO ADD YOUR DETAILS TO THE WAITING LIST, CLICK ON THE ‘BOOK TO ATTEND’ BUTTON BELOW OR SCAN THE QR CODE. Tuesday 5 August 2025, 1 – 5 pm…
In this vlogcast, Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London, speaks with Nona about considerations for MPN patients when travelling away from their home city and how to be prepared and cope with change if events cause disruption to travel. Overall, the discussion emphasizes resilience, practical planning and mental well-being to help MPN…
Since late 2024, there has been a global shortage of Pegasys, the interferon medicine used by many people living with MPNs. This is due to delays in building a new manufacturing site and gaining the necessary approvals. In the UK, the NHS arranged for patients to be prescribed Besremi as an alternative interferon. Besremi has…