Adrian

I was diagnosed with myelofibrosis (MF) in 2011. I was fortunate to have been diagnosed early because I competed in many difficult ultra distance mountain bike races. I consider the early diagnosis to be ‘fortunate’ because without it, I would have pushed myself very hard in a tough race and would probably have had a…

Sylvia R

Michael, my husband, Aged 66 was diagnosed with Myelofibrosis in March 2014 He had a Bells Palsy episode in 2012 and was admitted to hospital as we thought it was a stroke and he has had headaches ever since. The hospital said he had a low platelet count and mentioned Thrombocytosis in a letter to…

David L

I was first diagnosed with polycythemia vera when I was 46. I am now 74.The discovery of the disease was quite by accident, although I had not been feeling very well. I was due to have a minor operation and a blood test was taken. It was found that my blood was quite thick and…