Our vision and desire is that one day there will be a cure and an answer to what causes MPN. Please join MPN Voice or email us at info@mpnvoice.org.uk to learn more.
I’m Jonathan and my daughter Francesca has an MPN. I’d never heard of it until her diagnosis and hearing the…
My name is Jamie White and I ran the London marathon to fundraise for MPN Voice. Why did you decide…
My name is Andrew Livingstone, I was diagnosed with ET after a rollercoaster journey of mostly negative emotions, uncertainty…
As a young person living with an MPN I hope that my story will provide comfort to other young people…
“My Mum is my inspiration. I feel helpless watching her struggle with her condition and realised fundraising was my way…
“My wife’s illness inspired me to become a fundraiser myself, it is not something I have ever done before,…
The language of haematologists is complex. Knowing the lingo can help you find your way in the strange land of myeloproliferative neoplasms (MPNs). When you first learn you have a…
As patients with myeloproliferative neoplasms (MPNs), there’s one thing many of us have in common: we may feel fatigued. But there are solutions available that can give us more energy.…
Some people with myeloproliferative neoplasms (MPNs) feel just fine. If you feel strong, take advantage of this and protect your long-term health by getting active. Not everyone with an MPN…
A coordinated care plan between your haematologist and your obstetrician helps ensure the health of you and your unborn child. Some people are diagnosed with a myeloproliferative neoplasm (MPN) in…
One of the biggest challenges some people face when they have a myeloproliferative neoplasm (MPN) is finding someone to talk with, someone who really understands. Many of us didn’t know…
Myeloproliferative neoplasms (MPNs) are chronic, long-term illnesses, and because they continue through our lives, they can change the way we see ourselves. While many people take their illness in their…
We are very pleased to advise that NHS England has confirmed that Besremi is now available as a treatment option for specific people with MPNs – essential thrombocythaemia (ET), polycythaemia vera (PV) or myelofibrosis (MF) and for the duration of the Pegasys shortage. Doctors can now consider switching to the use of Besremi as an…
The video of the MPN Voice patients’ virtual forum, held on 16 Oct 2024, is now available to view. This…
We are delighted to announce that NICE (the National Institute for Health and Care Excellence) has recently released guidance recommending fedratinib as an option within…
In conversation with Prof Claire Harrison, Guy’s & St Thomas’ NHS FT, who clarifies the situation regarding the temporary shortage…
The video of the MPN Voice patients’ virtual forum, held on 11 September 2024, is now available to view. This…
