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Search:
  • About Us
    • Our Mission
    • News
    • Who is who at MPN Voice – meet the teams
    • Videos
      • MPN Voice YouTube videos
      • Living with MPNs Day Saturday 16th November 2024 in London
      • Living with MPNs Day Saturday 18th November 2023 in London
      • All Other Videos
    • Newsletters
    • How your money helps
    • Epidemiology Study
    • Young People and MPNs Blog
    • MPN Voice Vlogcasts – In Conversation With …..
  • About MPNs
    • About MPNs
      • Diagnosed with MPN?
      • What do blood counts mean?
      • What are MPNs?
      • What causes MPNs?
      • Essential thrombocythaemia (ET)
      • Myelofibrosis (MF)
      • Polycythaemia vera
      • A-Z of terminology
    • Treatments
      • General Info
      • Treatment leaflets
      • Anagrelide
      • Integrative treatment
      • Aspirin
      • Cytarabine
      • Hydroxycarbamide
      • Inrebic
      • Interferon alpha
      • Melphalan, busulfan and P32
      • Ruxolitinib
      • Thalidomide
      • Venesection (phlebotomy)
      • Bone marrow transplant
      • Additional treatments
    • Trials and Research
      • Trials and Research
      • Going on a Trial
      • Current UK MPN trials
      • Guy’s Hospital, London, MPN Clinical Trials Portfolio
      • MPN Voice supported trials
      • Mosaicc
      • Vorinostat Phase II Study Results
      • CMML (Chronic Myelomonocytic Leukaemia) MONOCLE Study
    • For Health care professionals
  • Living With MPNs
    • Real Stories
    • I Am…
    • Treatment decisions
    • Talking with your doctor
    • Everyday Challenges
      • Everyday Challenges
      • Contraceptives and HRT
      • Deep Vein Thrombosis
      • Fighting fatigue
      • Renewing Intimacy
      • Coping with side effects
      • If you need surgery
      • Itchy skin
    • Your state of mind
      • Your state of mind
      • What you may be feeling
      • Looking well but feeling awful
      • Communicating feelings
      • Coping long-term
    • Blood Clots
      • After a blood clot
      • After a serious clot
      • End-of-life
      • Hospice care
      • Reducing pain and symptoms – palliative care
    • Ways to feel better
      • Ways to feel better
      • Complementary therapies
      • Reflexology and massage therapy
      • Relaxation podcasts for people with MPNs
      • Staying active
      • Eating well
      • Keeping track of symptoms
      • Reducing stress
      • Know the warning signs
      • Staying well
    • Pregnancy
      • MPNs in pregnancy
      • Planning before pregnancy
      • During pregnancy
      • Miscarriage
    • Practical advice
      • Practical advice
      • Cost of medications – exemption certificate
      • Employment rights
      • Travel information
      • Planning for travel
      • MPN Alert Cards
      • Living abroad
    • GSK’s MPN Time To Be Seen
  • Get Involved
    • How To Get Involved
    • Events
    • Patients forums
    • Buddy Programme
      • About the Buddy Programme
      • Join the programme
    • Donate
    • Fundraising
      • Fundraise
      • Design your own event
      • Upcoming fundraising events
      • Fundraising Heroes
      • Past fundraisers
    • Volunteer
    • Advocacy
      • Advocacy
      • HealthUnlocked
  • My MPN Voice App
    • Learn more about MY MPN VOICE APP
    • Overview of the My MPN Voice App – with Study and without Study
    • Next Steps – Stages, Sign Up & Support
    • FAQs – GSTT Study App and Wearables
  • Contact
    • Contact Us
    • Submit a story
    • Join our mailing list
  • COVID-19
    • Fast access to COVID medicines for people with blood cancer
    • 4th dose COVID vaccination for people with MPNs
      • COVID-19 Vaccine for people with MPNs
    • Coronavirus (COVID-19) Advice and Information
    • COVID-19 and Day-to-Day Life: making decisions about your risk of exposure
    • Emotional and well-being advice
    • Webinar Videos
    • Podcasts- Relaxation podcasts for people with (MPNs)
    • Donation Appeal
    • MPN Alert Cards

Monthly Archives: May 2022

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  3. May

Video of the MPN Voice patients’ in-person forum Cork, Sat 21 May 2022

NewsBy Maz CdMay 31, 2022

This was the first in-person forum MPN Voice has held since the end of 2019, it was very well attended by MPN patients, with their families and friends, from across Ireland, who were all extremely pleased to meet-up once again in-person, to talk to other people with MPNs and to hear the presentations given by…

In Conversation With … Kirsty Crozier, ANPR

MPN Voice Vlogcasts – In Conversation With …..By Maz CdMay 19, 2022

In Conversation With … Kirsty Crozier, ANPR, based in The Great Western Hospital, Swindon.  Kirsty talks to Nona about her role as the haematology advanced nurse practitioner within the haematology department and the support and services she provides to MPN patients.  She also talks about how haematology ANPRs and CNSs (clinical nurse specialists) support patients…

A Day in the Life: Having a Bone Marrow Biopsy

Young People and MPNs BlogBy Maz CdMay 17, 2022

Bone marrow biopsies. A hot topic at patient forums – online and in-person – and the three words that cause anxiety in many as soon as they’re spoken. Do we need a biopsy to confirm an MPN diagnosis? When should we have one? What do they tell us that blood counts don’t reveal? And how…

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