In Conversation With … Dr Arvind Pillai, Consultant Haematologist, The Countess of Chester Hospital, who talks to Nona about Interferon. Nona starts by asking Dr Pillai what it is and how effective it is for treating MPNs. Dr Pillai explains that Interferon used as a treatment, is a manmade copy of the interferon which is…
A very special interview with Nona Baker Co-Chair of MPN Voice and Professor Claire Harrison. In this interview Professor Claire Harrison shares breaking news with up-to-date results from the MAJIC PV Study. Following a recent media article it also clarifies and reassures the importance of existing, very successful therapies such as Hydroxycarbamide and Interferons, which…
In Conversation With … Alisia O’Sullivan, ET patient and MPN Voice volunteer, who talks to Nona about her ET and being involved with MPN Voice. Alisia was diagnosed with ET 15 years ago, she tells Nona how her diagnosis came about, she was going to give blood and almost missed going and was very glad…
In Conversation With … Prof Lesley Anderson, Chair in Health Data Science, Aberdeen Centre for Health Data Science and Chief Investigator for the MOSAICC Epidemiology Study, who talks to Nona about how the study started and how she became involved. Lesley tells Nona that the study started as part of her study portfolio when working…
In Conversation With … CNS Avril Gleeson, Haematology Clinical Nurse Specialist, Mercy University Hospital, Cork, Ireland, who talks to Nona about the telephone clinic for reviewing MPN patients, which was set-up before the COVID pandemic, and the benefits for the patients, particularly patients who have challenges travelling to the hospital, or patients who are working…
In Conversation With … Dr Nauman Butt, Consultant Haematologist, The Clatterbridge Cancer Centre, Liverpool, who talks to Nona about side effects of MPNs and medications, particularly skin complications of itch (pruritus) and skin cancers. Dr Butt talks about the increased risk factors for skin cancers (non-melanomas) for MPN patients from sun exposure and some treatments,…
In Conversation With … Maz Campbell-Drew, ET patient and MPN Voice administrator, who talks to Nona about her ET diagnosis in 2003 to the present time, and being the MPN Voice administrator. Maz says she found MPN Voice, or MPD Support as it was then called, in 2008, as she was starting Hydroxycarbamide and wanted…
In Conversation With … Dr Eibhlin Conneally, Consultant Haematologist, St James’ Hospital, Dublin, who talks to Nona about her interest in MPNs, and how active research has been in the last 10 – 20 years particularly with the discoveries in understanding mutations and her hope that in the next 10 years this can be translated…
In Conversation With … Adam Spielman who talks to Nona about his PV, from diagnosis in 2008 to the present day. Adam tells Nona that his GP recommended blood tests because of nerve damage in his leg, and that due to the results he was referred to a haematologist who diagnosed PV. The diagnosis was…
In Conversation With … Chris McEvilly who talks to Nona about her PV, which was diagnosed 3 years ago after moving from South Africa and settling in Cork. She tells Nona that the diagnosis was a shock to her and her husband and that learning more about PV has helped them both, she also tells…