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MPN Voice
mpnvoice.org.uk
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      • After a blood clot
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      • COVID-19 Vaccine for people with MPNs
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    • COVID-19 and Day-to-Day Life: making decisions about your risk of exposure
    • Emotional and well-being advice
    • Webinar Videos
    • Podcasts- Relaxation podcasts for people with (MPNs)
    • Donation Appeal
    • MPN Alert Cards
Search:
  • About Us
    • Our Mission
    • News
    • Who is who at MPN Voice – meet the teams
    • Videos
      • MPN Voice YouTube videos
      • Living with MPNs Day Saturday 16th November 2024 in London
      • Living with MPNs Day Saturday 18th November 2023 in London
      • All Other Videos
    • Newsletters
    • How your money helps
    • Epidemiology Study
    • Young People and MPNs Blog
    • MPN Voice Vlogcasts – In Conversation With …..
  • About MPNs
    • About MPNs
      • Diagnosed with MPN?
      • What do blood counts mean?
      • What are MPNs?
      • What causes MPNs?
      • Essential thrombocythaemia (ET)
      • Myelofibrosis (MF)
      • Polycythaemia vera
      • A-Z of terminology
    • Treatments
      • General Info
      • Treatment leaflets
      • Anagrelide
      • Integrative treatment
      • Aspirin
      • Cytarabine
      • Hydroxycarbamide
      • Inrebic
      • Interferon alpha
      • Melphalan, busulfan and P32
      • Ruxolitinib
      • Thalidomide
      • Venesection (phlebotomy)
      • Bone marrow transplant
      • Additional treatments
    • Trials and Research
      • Trials and Research
      • Going on a Trial
      • Current UK MPN trials
      • Guy’s Hospital, London, MPN Clinical Trials Portfolio
      • MPN Voice supported trials
      • Mosaicc
      • Vorinostat Phase II Study Results
      • CMML (Chronic Myelomonocytic Leukaemia) MONOCLE Study
    • For Health care professionals
  • Living With MPNs
    • Real Stories
    • I Am…
    • Treatment decisions
    • Talking with your doctor
    • Everyday Challenges
      • Everyday Challenges
      • Contraceptives and HRT
      • Deep Vein Thrombosis
      • Fighting fatigue
      • Renewing Intimacy
      • Coping with side effects
      • If you need surgery
      • Itchy skin
    • Your state of mind
      • Your state of mind
      • What you may be feeling
      • Looking well but feeling awful
      • Communicating feelings
      • Coping long-term
    • Blood Clots
      • After a blood clot
      • After a serious clot
      • End-of-life
      • Hospice care
      • Reducing pain and symptoms – palliative care
    • Ways to feel better
      • Ways to feel better
      • Complementary therapies
      • Reflexology and massage therapy
      • Relaxation podcasts for people with MPNs
      • Staying active
      • Eating well
      • Keeping track of symptoms
      • Reducing stress
      • Know the warning signs
      • Staying well
    • Pregnancy
      • MPNs in pregnancy
      • Planning before pregnancy
      • During pregnancy
      • Miscarriage
    • Practical advice
      • Practical advice
      • Cost of medications – exemption certificate
      • Employment rights
      • Travel information
      • Planning for travel
      • MPN Alert Cards
      • Living abroad
    • GSK’s MPN Time To Be Seen
  • Get Involved
    • How To Get Involved
    • Events
    • Patients forums
    • Buddy Programme
      • About the Buddy Programme
      • Join the programme
    • Donate
    • Fundraising
      • Fundraise
      • Design your own event
      • Upcoming fundraising events
      • Fundraising Heroes
      • Past fundraisers
    • Volunteer
    • Advocacy
      • Advocacy
      • HealthUnlocked
  • My MPN Voice App
    • Learn more about MY MPN VOICE APP
    • Overview of the My MPN Voice App – with Study and without Study
    • Next Steps – Stages, Sign Up & Support
    • FAQs – GSTT Study App and Wearables
  • Contact
    • Contact Us
    • Submit a story
    • Join our mailing list
  • COVID-19
    • Fast access to COVID medicines for people with blood cancer
    • 4th dose COVID vaccination for people with MPNs
      • COVID-19 Vaccine for people with MPNs
    • Coronavirus (COVID-19) Advice and Information
    • COVID-19 and Day-to-Day Life: making decisions about your risk of exposure
    • Emotional and well-being advice
    • Webinar Videos
    • Podcasts- Relaxation podcasts for people with (MPNs)
    • Donation Appeal
    • MPN Alert Cards

Category Archives: Fundraising

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Walk to Support September 2025 Fundraising Campaign

Events, Fundraising, Fundraising Event, Get Involved, NewsBy Maz CdAugust 1, 2025

MPN Voice is delighted to confirm that we will again be running our flagship “Walk to Support” event in September 2025 which also coincides with Blood Cancer Awareness Month and MPN Awareness Day which is 11 September 2025.  You can walk at any time to suit during this month! During this very special month we…

Abseil 2016

FundraisingBy Tim EllisMay 13, 2016

On Friday 13th May 2016 some amazing people abseiled 160 feet down the front of St Thomas’ Hospital, London, to raise money for MPN Voice. Between them they raised over £25,000!

Marilyn, the MPN Voice Fundraising Co-Ordinator

Essential Thrombocythaemia, FundraisingBy Tim EllisMarch 17, 2016

Marilyn tells us in this video why she wanted to be part of the Fundraising Team

Fundraising for MPN Voice

Essential Thrombocythaemia, FundraisingBy Tim EllisMarch 10, 2016

John took part in the 2015 Virgin London Marathon in aid of MPN Voice

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Registered Charity No 1160316 -15

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