REGISTRATION NOW OPEN!
The Northern MPN Patient Day is an all-day event with the opportunity to attend in-person, or watch the live stream online.
The venue for attending in-person is: The Milner York Hotel, Station Road, York, YO24 1AA. For travel directions Click Here.
Timings: Registration and coffee from 08.30 am. Start time: 9 am. Close at: 4 pm. Complimentary refreshments and lunch will be served during the day.
We have curated a full day of expert-led insights, covering everything from the latest research to essential self-care:
- Clinical Frontiers: Get the latest on trial updates and post-EHA developments from leading specialists, including Prof Tim Somervaille and Dr Moritz Reichert
- Targeted Symptom Management: Join Dr Alesia Khan and CNS Angela Thompson for a deep dive into symptom scores, nutritional optimization, and a focused MDT conversation on managing fatigue
- The Power of Experience: Hear candid accounts from patients regarding their trial journeys and the specific challenges faced by young patients
- In-Person Exclusive: Join us for dedicated breakout sessions in the afternoon, covering ET, PV, MF, the Young Persons’ group, and a session for Friends and Family
- Closing Outlook: The day concludes with “Having an MPN – What the future holds with Prof Claire Harrison (Recorded)
For those attending in-person the programme will also include breakout groups where ET, MF and PV patients can meet in smaller groups to discuss everyday challenges and swap tips. There will also be a young person’s group for young people with MPNs, and a family and friends group where partners/family/friends can meet to discuss the challenges faced by the patient and themselves. *Please note that for reasons of confidentiality the breakout groups will not be live streamed or recorded.
Programme – View a copy of the programme here (this is subject to change). The presentations will be *recorded, videos will be available to view on the MPN Voice YouTube channel approximately 1 – 2 weeks after the event.
This will be a hybrid event with the choice of attending in-person or watching a live stream, when completing the online registration form you will be able to indicate whether you prefer to attend the meeting in-person or watch online. This event does get booked up very quickly, you are advised to register as soon as possible. The online link will be sent nearer to the event for those registering for this option.
This meeting is free to attend, however, MPN Voice is a charity which relies on donations to support forums, research and patient support activities, and we kindly ask that you consider making a donation to cover some of the costs for the lunch and refreshments, which is approximately £10 per person, thank you. You can make a donation when registering, via our JustGiving page (please include a message with your donation to say it is for the Northern MPN Patient Day). You can also make a donation on the day at the event.
