In Conversation with… Prof Claire Harrison, considerations for MPN patients when travelling

In this vlogcast, Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London, speaks with Nona about considerations for MPN patients when travelling away from their home city and how to be prepared and cope with change if events cause disruption to travel.  Overall, the discussion emphasizes resilience, practical planning and mental well-being to help MPN…

Update on the availability of Pegasys – 30 May 2025

Since late 2024, there has been a global shortage of Pegasys, the interferon medicine used by many people living with MPNs.  This is due to delays in building a new manufacturing site and gaining the necessary approvals. In the UK, the NHS arranged for patients to be prescribed Besremi as an alternative interferon.  Besremi has…

In Conversation with… Dr Kathleen McHugh, Consultant Clinical & Health Psychologist, BMT Unit, QEUH, Glasgow

In this vlogcast, Dr Kathleen McHugh shares her talk/presentation – Psychological adjustment after diagnosis of MPN; coping with uncertainty.​ The talk focuses on coping with a serious illness diagnosis, particularly for newly diagnosed patients and their families. ​ Dr McHugh uses analogies and practical advice to help patients understand and manage their emotional responses to…

In Conversation with… Dr Patrick Harrington, discussing the My MPN Voice App

The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the development and progress of an My MPN Voice app designed to help patients monitor their myeloproliferative neoplasm (MPN). ​ The app, launched in April 2024, has over 300 users who track their symptoms and biometric data using a Withings smartwatch.…

MAJIC-PV Study results

The MAJIC-PV Study is now completed and the results have been published Researchers wanted to find out how well Ruxolitinib worked compared with the best available therapy as a treatment for people with PV who were at risk of developing blood clots that could lead to a heart attack or stroke.  Specifically, the study looked…

In Conversation with… The Steering Committee Members of the MPN Advocates Network

In Conversation with The Steering Committee Members of the MPN Advocates Network.  The MPN AN was founded in 2013 by representatives from several MPN patient support groups as a way of creating and maintaining collaboration between these organizations and providing a platform for joint activity.  MPN AN is a leading international organization that operates for…