NIHR’s Be Part of Research registry We would like to share this blog with you, from the NIHR Chief Executive Officer and DHSC Chief Scientific Adviser Professor Lucy Chappell, who reflects on the vital role of participants in health and care research and how the NIHR’s Be Part of Research registry will help transform the…
The video of the MPN Voice patients’ virtual forum, held on 3 July 2025, is now available to view. About EHA – a global network actively collaborating with national and international medical associations and societies, advancing haematology education across Europe. The EHA congress is an annual event for clinicians, researchers and other professionals in the…
REGISTRATION OPENING SOON! We’re heading back to London for the MPN Voice Living with MPNs Day – a powerful day of connection, learning and hope for anyone affected by myeloproliferative neoplasms (MPNs). Whether you’re living with ET, PV, or MF, supporting a loved one, or simply seeking the latest updates on clinical trials and treatments,…
The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the new study on thrombosis risk in MPN patients using QRISK3 Score. Dr Harrington explains the research the team at Guy’s Hospital have done to see if a new way of assessing patients’ risk of thrombosis (clotting) called QRISK3, could be…
MPN Voice is delighted to confirm that we will again be running our flagship “Walk to Support” event in September 2025 which also coincides with Blood Cancer Awareness Month and MPN Awareness Day which is 11 September 2025. You can walk at any time to suit during this month! During this very special month we…
In this vlogcast, Neil shares his personal journey living with a MPN, beginning with his diagnosis of ET in 1994 and progressing to MF in 2023. He speaks candidly about the emotional and physical toll of his MPN, his experiences with treatment, and the ongoing decision-making process around a potential stem cell transplant. Their candid…
REGISTRATION NOW OPEN! Friday 19 September 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue Crowne Plaza Hotel Chester, Trinity Street, Chester, CH1 2BD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum, with presentations from the haematology teams from The Countess of Chester Hospital, The Clatterbridge Cancer…
REGISTRATION NOW OPEN! Friday 3 October 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue The Royal Station Hotel, Neville Street, Newcastle-upon-Tyne, NE1 5DH THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum is an opportunity to meet other people with MPNs, to share knowledge and to hear…
REGISTRATION NOW OPEN! Friday 7 November 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue Victoria Hall, Norfolk Street, Sheffield, S1 2JB THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum, with presentations from the haematology teams from Sheffield Hospital, Rotherham Hospital and Leeds Hospital, is an opportunity…
MHRA approves pharmaand GmbH’s Pegasys® (peginterferon alfa-2a) as a treatment for eligible patients with the myeloproliferative neoplasms (MPNs) blood cancers polycythaemia vera (PV) and essential thrombocythaemia (ET) First MHRA approval of an interferon alfa as a monotherapy treatment for adults with essential thrombocythaemia (ET) First MHRA approval of an interferon alfa as a monotherapy treatment…